Multiple System Atrophy, or MSA, is a rare, degenerative neurologic condition. MSA is considered a type of Parkinsonism, but with more widespread effects on the brain and body. It is the equivalent of having Parkinson’s, ALS and MS with aggressive results. At this time, there is no treatment and the prognosis is an average life span of nine to eleven years.
Tina has gone from an independent, extroverted, active person who now requires assistance with stairs, showering, preparing food, writing, and driving. Speaking has become more difficult; she now requires assistance with phone calls. Tina’s wish is to see her children graduate from high school, an event most of us take for granted.
MSA has changed how the family functions as a whole. Her partnter, Crista, is now her full-time caregiver. Crista also shoulders most of the demands of caring for their four children, whose ages vary from five to seventeen.
Tina is reaching out to the community for help with basic and necessary accommodations that will allow her to actively participate in her care as much as possible, and spend quality time at home with her loving family. She isn’t interested in a “bucket list,” instead, she prefers a humbler and practical approach to meeting the demands of her progressive condition with dignity.
This “Go Fund Me” is dedicated to making ADA changes to Tina’s home and car, as her future will require the use of a wheelchair. She needs a bathroom remodel with larger and modified access, and design accommodations for safe self-care. Funds will also go towards handrails around the home, and ramps in and out of the house and car.
We are grateful for any and all help you offer; no donation is too small. It is extremely difficult for Tina and Crista to ask for help, but know that opening their hearts to receiving help, is part of this brave journey. Please know that any donation you provide will go directly toward Tina’s needs.