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Background
Tiffany Nesvig is my mother in law, and one of most amazing, strongest, positive people I have ever met. That is why I need her story to be heard. I have never seen someone endure so much pain, and still be the shining light at the end of the tunnel. Tiffany brings her family together and she cherishes every moment with her kids and grandchildren. She would do anything and everything for them. I feel so lucky everyday that I get to call Tiffany my family. I know the more people who hear her story, the more likely that someone will be able to find a cure, or anything to help her. Tiffany is not alone in this battle, and if we spread the awareness of this disease then maybe others can be helped too.
Tiffany's Story
In 1992, shortly after Tiffany had her third child she started feeling a numbness in her pinky, and within two weeks it spread. She lost feeling in her hands, and eventually over time lost the ability to walk on her own. For years doctors misdiagnosed her with MS, insisting it couldn't be anything else, but the treatments they were giving her did not help. After ten years they were finally able to diagnose Tiffany with Olivopontocerebellar atrophy. The reason they had such a hard time diagnosing her is because it is such a rare disease, and is more commonly onset in men ages 50 and up. Tiffany was only in her early 20's at the time! The cause for Olivopontocerebellar atrophy is unknown, and sadly there is no cure. Just to list a few symptoms of Olivopontocerebellar atrophy are; ataxia (clumsiness), problems with balance and speech, nerve damage, migraines, daily headaches and more. It is very hard for me to say but it is just going to progress. There are no specific treatments, but physical therapy is recommended to help with symptoms and to prevent complications. Currently, I take Tiffany to the gym to try and help her gain strength in her legs, but I am not a professional physical therapist so I'm not exactly sure what I am doing.
Our Goal
Our goal with this campaign is to raise money to help Tiffany with any medical attention she needs, and to see a physical therapist. Since there is not a doctor who specializes in this disease around here, we will be using the money to send Tiffany to see a specialist. We are hoping that she can learn to use a walker again, instead of a wheelchair. She would love more than anything to walk with her grandchildren and children again.
Tiffany Nesvig is my mother in law, and one of most amazing, strongest, positive people I have ever met. That is why I need her story to be heard. I have never seen someone endure so much pain, and still be the shining light at the end of the tunnel. Tiffany brings her family together and she cherishes every moment with her kids and grandchildren. She would do anything and everything for them. I feel so lucky everyday that I get to call Tiffany my family. I know the more people who hear her story, the more likely that someone will be able to find a cure, or anything to help her. Tiffany is not alone in this battle, and if we spread the awareness of this disease then maybe others can be helped too.
Tiffany's Story
In 1992, shortly after Tiffany had her third child she started feeling a numbness in her pinky, and within two weeks it spread. She lost feeling in her hands, and eventually over time lost the ability to walk on her own. For years doctors misdiagnosed her with MS, insisting it couldn't be anything else, but the treatments they were giving her did not help. After ten years they were finally able to diagnose Tiffany with Olivopontocerebellar atrophy. The reason they had such a hard time diagnosing her is because it is such a rare disease, and is more commonly onset in men ages 50 and up. Tiffany was only in her early 20's at the time! The cause for Olivopontocerebellar atrophy is unknown, and sadly there is no cure. Just to list a few symptoms of Olivopontocerebellar atrophy are; ataxia (clumsiness), problems with balance and speech, nerve damage, migraines, daily headaches and more. It is very hard for me to say but it is just going to progress. There are no specific treatments, but physical therapy is recommended to help with symptoms and to prevent complications. Currently, I take Tiffany to the gym to try and help her gain strength in her legs, but I am not a professional physical therapist so I'm not exactly sure what I am doing.
Our Goal
Our goal with this campaign is to raise money to help Tiffany with any medical attention she needs, and to see a physical therapist. Since there is not a doctor who specializes in this disease around here, we will be using the money to send Tiffany to see a specialist. We are hoping that she can learn to use a walker again, instead of a wheelchair. She would love more than anything to walk with her grandchildren and children again.
Organizer and beneficiary
Tiffany Nesvig
Beneficiary