Memorial Fund for Tierney L. Ratti: A Mom to Many
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Memorial Fund for Tierney L. Ratti: My Wife and a Hero, Angel and Mother to Many
Tierney Sue Lynch Ratti, my devoted wife and mother to Alex and Sam, healing counselor to dozens of sufferers of Pityriasis Rubra Pilaris (PRP) and life’s little challenges, has passed away and her suffering is finally over. Though Tierney managed her PRP exceedingly well through her early years and middle age, she suffered horribly from PRP and related health consequences for the last five years. The disease has been almost as devastating to our family and finances as it was to her body, and we find ourselves in need of help to pay for her end-of-life transition and fulfill her final wishes.
We aren’t sure of all the costs yet, but they may include expenses for her hospice care and friend/family visitations, fulfilling her wishes to donate her body to science (e.g. anatomical donations, genetic tests), her Celebration of Life and possibly legal expenses. Some costs may be covered by state programs and full costs will be uncertain for some time, but we can tell they will be significant and possibly in the range of $10-20K (hopefully not more). Any help that can offered will be greatly appreciated, and any excess funds we collect will be donated to further research into PRP and other rare conditions like the leukoencephalopathy she recently developed.
Please note that Tierney was incredibly generous with her love and counsel not only to her family and friends, but also to all that suffer from PRP and associated conditions around the world. Her generosity drove her throughout her life to help others at every opportunity, to create and grow the PRP Support Group on Facebook as a part of the PRP Alliance nonprofit organizations to advocate for others, and her generosity will not end with her passing. Tierney made it clear to me and our kids, that to whatever extent possible, she wants to donate her body to medicine and particularly to research into PRP and other rare diseases. It is proving to be a very challenging process getting Tierney to the right places (e.g. Eastern Virginia Medical School, Medical College of Virginia and the Thomas Jefferson University Department of Dermatology), but we want to make sure we fulfill her wishes as best we’re able and honor her memory the best we know how. Thank God for Alex and the skills and knowledge he has developed, as they are perfect to navigate the red tape associated with getting the most out of Tierney’s gifts. Thank God for Samantha and her nurturing heart, for being with my wife for her last goodbye. Sam you’re a beautiful soul!
We can’t fully express how much you all mean to her and our family, but THANK YOU ALL for your love and support for Tierney throughout her life, and THANK YOU ALL for the kind words and stories over the past few weeks and THANK YOU ALL for anything you can contribute to help her one last time.
Tierney Sue Lynch Ratti, my devoted wife and mother to Alex and Sam, healing counselor to dozens of sufferers of Pityriasis Rubra Pilaris (PRP) and life’s little challenges, has passed away and her suffering is finally over. Though Tierney managed her PRP exceedingly well through her early years and middle age, she suffered horribly from PRP and related health consequences for the last five years. The disease has been almost as devastating to our family and finances as it was to her body, and we find ourselves in need of help to pay for her end-of-life transition and fulfill her final wishes.
We aren’t sure of all the costs yet, but they may include expenses for her hospice care and friend/family visitations, fulfilling her wishes to donate her body to science (e.g. anatomical donations, genetic tests), her Celebration of Life and possibly legal expenses. Some costs may be covered by state programs and full costs will be uncertain for some time, but we can tell they will be significant and possibly in the range of $10-20K (hopefully not more). Any help that can offered will be greatly appreciated, and any excess funds we collect will be donated to further research into PRP and other rare conditions like the leukoencephalopathy she recently developed.
Please note that Tierney was incredibly generous with her love and counsel not only to her family and friends, but also to all that suffer from PRP and associated conditions around the world. Her generosity drove her throughout her life to help others at every opportunity, to create and grow the PRP Support Group on Facebook as a part of the PRP Alliance nonprofit organizations to advocate for others, and her generosity will not end with her passing. Tierney made it clear to me and our kids, that to whatever extent possible, she wants to donate her body to medicine and particularly to research into PRP and other rare diseases. It is proving to be a very challenging process getting Tierney to the right places (e.g. Eastern Virginia Medical School, Medical College of Virginia and the Thomas Jefferson University Department of Dermatology), but we want to make sure we fulfill her wishes as best we’re able and honor her memory the best we know how. Thank God for Alex and the skills and knowledge he has developed, as they are perfect to navigate the red tape associated with getting the most out of Tierney’s gifts. Thank God for Samantha and her nurturing heart, for being with my wife for her last goodbye. Sam you’re a beautiful soul!
We can’t fully express how much you all mean to her and our family, but THANK YOU ALL for your love and support for Tierney throughout her life, and THANK YOU ALL for the kind words and stories over the past few weeks and THANK YOU ALL for anything you can contribute to help her one last time.
Fundraising team: Tierney's Army (3)
James Ratti
Organizer
Virginia Beach, VA
Charles Ratti
Beneficiary
Samantha Ratti
Team member
