I am posting on behalf of my best friend and her family...In the end of May Tiernan (my friend's 8 year old son) was taken for bloodwork because his mom Libby suspected he may have mono. Their world was quickly turned upside down after the blood results showed a strong suspicion of Leukemia. Their family was sent to Syracuse to see a Specialist and receive more testing. On May 24th, Tiernan had a bone marrow biopsy. The following day they were told the results of the test were negative. Normally this is great news for a family. In this instance, the Specialist thought that Tiernan might have a rare disease called Fanconi Anemia. The day following biopsy there was bloodwork sent out to test for the disease. On June 7th, the family received the shocking news that Tiernan does indeed have Fanconi Amemia. Having this disease means that Tiernan will eventually have complete bone marrow failure and most likely need a bone marrow transplant. Other aspects of the disease, include increased risk of different types of cancer and various risks to his health, including shortened life span. While the family waits for genetic testing results, they are traveling to Syracuse for bloodwork to keep an eye on his counts. They are also making other important appointments with different specialists to try and manage the disease and get the care that Tiernan so desperately needs. This will include travel and other expenses. Please help support this family by donating. Anything that is given is greatly appreciated!
- Anna Novick
- Ariella, Naomi and Johanna Fisher
- Ruth Morenus
- Jessica Duncan
Organizer and beneficiary