Thank you for spending the time to read about our fundraiser! Myself and a group of friends and family are going to attempt the Three peaks challenge in 24 hours on the weekend of June 15/16 2024.

Hi my name is Ben, last year I was honoured to be asked to be the Godfather of a very special little man called Hunter! Hunter was diagnosed with Spinal Muscular Atrophy Type 1 a few weeks after being born, at the time it was very scary for everyone, googling SMA made it worst as none of the information was up to date. Kyle and Jade (Hunters parents) were given different options for treatment and opted for Gene therapy. Hunter at 5 weeks old was both the youngest and lightest person to undergo gene therapy treatment in both the UK and Europe! Since then he has had lots of therapy sessions, hospital appointments, sleep study’s and has gone from strength to strength aided with the hard work of both his parents!

At the moment there is no cure for SMA. Myself and friends are going to attempt the Three Peaks Challenge to try and raise money for this fantastic cause which will help support family’s who are going on a similar journey as Hunter, Jade and Kyle!

Do you want to join me in making a difference? I'm raising money in aid of Spinal Muscular Atrophy UK and every donation will help. Thank you in advance for your contribution to this cause that means so much to me.

More information about Spinal Muscular Atrophy UK: We will work tirelessly to raise awareness of SMA, to be a leading advocate for individuals and families and to ensure timely access to diagnosis, effective treatment and best management for all affected by SMA. We will listen to and support our community to make informed choices and will bring together skills, knowledge and resources in the UK and beyond, in our quest to optimise the future lives of all affected by SMA.