#Alveolar Capillary Dysplasia. It's likely you've never heard of it. We hadn't until our beautiful granddaughters were born. Things were great after their birth on August 4 2022, until hours later when they weren't. They were transferred to Albany Medical Center. Harper was then transferred to Morgan Stanley Children's in NYC and Scarlett shortly thereafter. Unfortunately Scarlett passed away on August 28th. Sadly, Harper will never go home with her parents. There is nothing that can be done to save her. Less than 200 children have ever been diagnosed with this disorder and never, ever, twins. Our family has been through hell. Tyler Duffy and Brittanie Ingalls are suffering an unimaginable loss. They have been living in NYC. The medical bills are already astronomical and they continue adding up. If you can, please donate to help pay for living expenses, their portion of medical bills, and funeral costs. If you can't, please share to help raise awareness of this rare disorder. Thank you for your support.

Alveolar Capillary Dyspasia is a very rare disorder that is present at birth. Infants experience severe life-threatening breathing problems and high blood pressure in the vessels of the lungs. These problems may occur within hours to a few days after birth.

Almost all infants pass away within the first month of life.