Theo's Journey
Donation protected
Hello my name is Theo and I am the cutest and happiest baby around :-)
I was born on the 9th March 2013. At my six week check up my GP noticed that my eyes were not fixing on anything and referred me to a pediatrician. The pediatrician upset my mummy and daddy by saying I was blind. This was the first time on my journey that I proved doctors wrong - I am not blind, however I am registered as being partially sighted and suffer from retinal dystrophy, nystagmus and a high myopia.
Since then I haven't been meeting my milestones and doctors have been trying to find out why. I have had a muscle biopsy, an MRI scan, lots of blood tests and genetic tests.
Recently I have been diagnosed with muscle eye brain disease which is a very very rare inherited genetic condition.
Mummy and daddy refused to do nothing and after lots of research came across The Family Hope Center based in the USA. In October 2014 mummy went to see the doctors on their 10 day trip to England. The doctors and mummy came up with a programme of activities which I need to do 6 hours a day for 5 days a week. It's hard work and sometimes mummy and daddy make me do it but I'm improving everyday.
Please donate to my fund. We are trying to raise £6,000 to use for another 9 months of targeted training with a standing frame at the Movement Centre in Oswestry. The NHS will not fund it.
I am looking forward to continuing the programme and using the standing frame every day and proving even more doctors wrong :-)
http://www.the-movement-centre.co.uk
I was born on the 9th March 2013. At my six week check up my GP noticed that my eyes were not fixing on anything and referred me to a pediatrician. The pediatrician upset my mummy and daddy by saying I was blind. This was the first time on my journey that I proved doctors wrong - I am not blind, however I am registered as being partially sighted and suffer from retinal dystrophy, nystagmus and a high myopia.
Since then I haven't been meeting my milestones and doctors have been trying to find out why. I have had a muscle biopsy, an MRI scan, lots of blood tests and genetic tests.
Recently I have been diagnosed with muscle eye brain disease which is a very very rare inherited genetic condition.
Mummy and daddy refused to do nothing and after lots of research came across The Family Hope Center based in the USA. In October 2014 mummy went to see the doctors on their 10 day trip to England. The doctors and mummy came up with a programme of activities which I need to do 6 hours a day for 5 days a week. It's hard work and sometimes mummy and daddy make me do it but I'm improving everyday.
Please donate to my fund. We are trying to raise £6,000 to use for another 9 months of targeted training with a standing frame at the Movement Centre in Oswestry. The NHS will not fund it.
I am looking forward to continuing the programme and using the standing frame every day and proving even more doctors wrong :-)
http://www.the-movement-centre.co.uk
Organizer
Lydia Horsman
Organizer