Help Theo Fight Brain Cancer

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$9,431 raised of 

Help Theo Fight Brain Cancer

Help Theo Fight Brain Cancer

0% complete

$9,431 raised of 

87 donations
Donation protected
Help Theo Fight Brain Cancer - Support for Medical Care & Family

Our precious Theo Boyas, born January 24, 2024, is one of fraternal twins—a boy and girl duo who should be enjoying their toddler years playing, exploring, and making memories together. Instead, Theo is fighting the battle of his life against an aggressive brain tumor.

Theo's Story:

On March 30, 2025, our world was turned upside down when Theo experienced his first seizures. After emergency hospitalization, a 24-hour EEG, and MRI imaging, we received devastating news: Theo has an NTRK1 fusion-positive high-grade glioma—a rare and aggressive form of brain cancer.

What was initially diagnosed as a low-grade tumor has since been upgraded to high-grade, requiring immediate and ongoing intensive treatment. The tumor is quite large, and its location makes it inoperable, meaning surgery is not an option. Theo's only chance at fighting this cancer is through a targeted chemotherapy medication.

Current Treatment & Medical Needs:

Theo takes oral chemotherapy (larotrectinib) twice daily and undergoes MRI scans every three months to monitor tumor response. Despite treatment, he continues to experience daily seizures, requiring constant monitoring and care.

His medical team includes:

  • Neurologist
  • Oncologist
  • Hematologist
  • Endocrinologist
  • Neurosurgeon

Theo also attends therapy sessions several times a week:

  • Occupational therapy
  • Developmental therapy
  • Speech-language therapy
  • Physical therapy

The Financial Reality:

To provide Theo with the round-the-clock care he needs and manage his complex medical schedule, his mother has had to leave her job. Between frequent specialist appointments, therapy sessions, and emergency hospital visits, the family is facing overwhelming medical bills and lost income.

Because the tumor is so large and cannot be surgically removed, Theo faces a long-term battle that requires ongoing chemotherapy, continuous monitoring, and specialized care—all of which comes with mounting costs.

How You Can Help:

Funds raised will go directly toward:

  • Medical expenses not covered by insurance
  • Chemotherapy and seizure medications
  • MRI scans and specialist appointments
  • Therapy sessions
  • Travel costs to and from medical appointments
  • Basic living expenses while Theo's mother is unable to work
  • Unforeseen medical emergencies

Theo's Spirit:

Despite everything he's enduring—the daily seizures, the hospital visits, the medications—Theo remains in remarkably good spirits. His smile lights up a room and his courage inspires everyone around him. He deserves every chance to grow up alongside his twin sister and his older sisters and live the full, joyful life every child should have.

No family should have to choose between their child's medical care and financial stability. Any amount you can contribute will make a meaningful difference in Theo's fight and help ease the burden on his family during this incredibly difficult time.

Please share Theo's story far and wide. Even if you cannot donate, your prayers, positive thoughts, and shares mean the world to us.

Thank you for standing with Theo and our family.

#TheosJourney #PediatricCancer
#BrainTumor #ChildhoodCancer
#NTRKFusion #RareCancer

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Co-organizers3

Laurie Sakurai
Organizer
River Grove, IL
Co-organizer
Diane Wade
Co-organizer
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