This family is fighting for their hero and will never give up!
At 32 weeks pregnant - this family was told that their unborn baby has Spina Bifida Myelomeningocele, a birth defect that affects a developing baby's spinal cord. There are several forms of this birth defect, and this baby has the most severe form along with Hydrocephalus (fluid that builds up in the ventricals in the brain). They were told that their baby would never crawl, walk, or talk, would live a life in a vegetative state and have absolutely no quality of life. They were told their best option was terminate their baby (at 32 weeks.) Their son, "The Mighty" was born two weeks later and endured two major surgeries to survive. One of the surgeries was to repair and close the massive opening in his back, which was done within hours of him being born. His second surgery was when he was six months old. Quinn’s parents left their other 3 children back home for an entire month while they relocated across the country for an extensive brain surgery to control fluid around his brain and spinal colomn. Quinn is continuously monitored and received exams, treatments, and care on a regular basis.
Quinn is four and since his birth, the family has made every effort to financially support all of Quinn’s medical needs, treatments and equipment that helps him thrive, stay healthy and strong and become more mobile. And against all their medical specialists preceived outcomes: he can crawl, talk, walk with assistance, cognitively is a typical 4 year old and is experiencing an amazing quality of life due to all the things the parents are working so hard to do for him.
Even with their dedication, persistance and hard work - these parents have a life long commitment to making sure his quality of life continues to improve, however, there is so much that is out of their hands and so much to battle. It took two long years for insurance to finally approve a walker for him and almost six months for a wheelchair, needed devices that help this 4 year old become mobile. Much of the recommended treatments are not covered by insurance and what is covered still results in thousands of dollars out of pocket.
They are working longer hours, extra jobs and are constantly doing everything they can to support their son's needs. The struggle for this family will be lifelong and The Mighty needs a magnitude of care in order to progress. Four year olds grow fast and he is continuing to grow out of the expensive equipment he has and as he grows, endures more appointments, treatments and therapies.
Please help this child continue his plan of care. These treatments are so vital at his age right now and will profoundly impact the quality of his life. The money will be used for the following:
-Hyperbaric Treatment ($6,800 per year)
-Neuro Physical Therapy ($7,500 for one month)
-Special Health Supplements ($250 per year)
-Vascular Therapy Machine ($6,000)
-Physical Therapy & Neurological Reengineering ($2,000)
-Urology and Neurology Visits, MRI’s, additional Physical Therapy and other therapies, exams, treatments and care that are a must for individuals with Spina Bifida that are not covered by insurance and/or partially covered are into the thousands...
Also, there are many unknowns with his disability, as he could need more surgeries, a special nurse to aid him in school when he starts next year, treatments for bowel and bladder issues, and that is just naming a few. These treatments above will hopefully minimize additional surgeries and thereapies, allowing him the best possible outcome of being a healthy and strong child.
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