I have been a friend of the Bellamy family and caregiver for their daughter Sarah for almost 5 years. Two of their three beautiful children were born with pontocerebellarhypoplasia type 2D, an extremely rare and disabling condition, the result of a genetic mutation both parents happen to carry. Sarah (17) and Jackson (6) will never walk or talk, but are expressive and receptive to human voices.  

They are both fed with a gastric-tube because of their risk of aspirating. Scott, their father, works seven days a week to pay for medical expenses and monthly payments for a specialized van to transport two wheelchairs, and college tuition for the oldest daughter. The family has been living in tight quarters in the home of his parents for the last six years. The grandparents are extremely supportive, but they have their own health issues (grandfather had cancer) and cannot help financially. Their mother Laura, works as much as she can, but has to take time off frequently when one of her children is ill. Laura knows that Sarah and Jackson’s father cannot continue to work two jobs without his own health suffering and he will be needing surgery on his wrist.

As I write this Sarah is in the hospital for a multitude of medical issues including kidney problems, pericardial effusion, and low blood levels.

This is a wonderful, very happy, and devoted family, but who are stressed financially. They will use wisely any amount you would be able to contribute.

Thank you for taking time to read about this amazing family.