The Squyer family

Please consider donating to one of the most beautiful families I know. Just so far, they have endured two ER visits, an ambulance ride, a three day (maybe more) hospital stay, an EEG, and an MRI. They have shitty marketplace health insurance and are facing a $10-15k hospital bill.

From Becky:

On Saturday (Sunday morning) at around 1:30am, I could hear Viv squiggling around in her crib. I turned on the baby monitor to check in. She was softly stroking her favorite stuffed bunny and was just staring, eyes open, but contently resting. I assumed she was self soothing and tried to go back to sleep.

Shortly thereafter, Paul got home from work and came to bed. That rustled me awake again so I checked the monitor. Same thing. Baby just lying down - staring contently. I didn’t think anything of it.

Just a little bit after then, I woke up again with a weird gut feeling. Something was wrong. I turned on the baby monitor once again but this time what I saw was my living nightmare.

Vivian was shaking uncontrollably eyes rolling to the back of her head. I shot out of bed and ran into the girls’ room to get her. I screamed to Paul to call 911 doing the exact opposite of what you’re ‘taught’. I was not calm. I didn’t answer anything concisely or easily. I was distracted, distracting and in shock. Paul, the level-headed and extremely grounding partner that he is, talked through it and an ambulance was at our house 15minutes later. Viv was unresponsive the entire time, purple lips, eyes just a sliver open but unable to focus or look around. She continued to convulse for 30+ minutes. I thought my baby was dead.

We went to the ER and they ran tests. She had a fever and was very tachy but the tests were entirely inconclusive. Viral infections all negative. Bacterial infections all negative. They discharged us.

We were home for 3 hours and it happened again. Paul had already left for work again for the day and he rushed home to grab us all and we drove back to the ER.

Same thing. All inconclusive. Only change this time was that she needed oxygen. Her O2 level was at 84 on room air.

We were admitted.

Baby is doing great now. There is still no answer as to why she had seizures so for the time, because she had a temp, they’re calling her seizures complex febrile seizures. We are hoping it was a one-night occurrence and I swear if I hear one more person say, “It was probably just a febrile seizure,” I might punch the wall.

I am traumatized and I miss Opie and I’m gonna need some time to mull through this one. I haven’t slept in at least 48 hours by now and my entire body hurts from holding my sweet baby for almost that full 48 hours. Truthfully I’m not sure if I’ll ever sleep again or if I’ll forever be staring at the baby monitor while my angels rest. Though - for a while I thought I’d never be able to do that again. Being their mama to my babies and a wife to my husband are really the only two things I care about in this life. So, lucky me. ❤️

Keep Tiny on your mind, please.