At the end of June 2025, for the third year running, I’ll be walking 100 miles over 3 days along the Jurassic Coast (Exmouth to Bournemouth) in the south west of England.

I will be taking on this grueling challenge to help raise funds in support of my friends charity RALLY ROUND RUPERT. The charity aims to raise awareness and advance clinical research into Spinal Muscular Atrophy (SMA). My friend George, his little boy Rupert, was born with the condition.

Spinal Muscular Atrophy (SMA) is a genetic, neuromuscular condition that causes muscle weakness and wastage due to a loss of motor neurons. Each year about 1 in 10,000 children are born with the condition and before 2016, without treatment, most children with SMA Type 1 were expected to live for less than two years. Today, early diagnosis and immediate medical intervention can significantly abate the impacts of SMA, drastically improving the quality of life for children affected, however very few people, including clinicians know about the disease.