I was diagnosed with Retinitis Pigmentosa ( A
degenerative retinal disease ) at the age of 21. I had already noticed some problems with my vision as early as 18 but I Thought most people just had problems with peripheral vision and night blindness. It was only at 21 when i was in the middle of my culinary course that I founf out and it had affected me adversely. I did not know hot to deal with the fact that i was going blind, and for the longest time i lived in fear. I stopped doing the things i loved doing and i put limitations on myself, all based on fear. Fear is a powerful enemy if you let it control you, but at some point you have to decide if fear is how you want to live your life or not. And i dont want to be full of fear of the gazes of people, fear of walking into something, even the fear of crossing a street and getting hit by a vehicle.
At the start of the year i wanted to turn things around, and i found some videos on youtube done by Bob Proctor, a great person and a wise man. And with the help of my loving girlfriend I started changing. I go out more often. Ive picked up my poi again and practice weekly at a park, i go on longer walks, i explore the city and get lost in it, ive even started building model kits which i thought would be useless to have in the past.
Naturally I still walk into things, i trip, i have small accidents, but theyre all worth it than being stuck in one place and missing out on the great things the world has to offer. I have a long way to go but im going down that road. And it has lead me to this point, finding a possibility of a cure or treatment. whether or not i succeeds the plan is to keep going, keep trying new things. Depression will always come and go in life, and i know how it feels to be at the bottom of that rabbit hole. But theres a way up, it just takes time, and consistency to pull yourself out of it.
I believe that this world should be held together by the bonds of people, and not seperated by our differences. Any help is appreciated even if its just a small letter or a quote, those things go a long way. may it be to me or to anybody you see in need.
So this is where all of you come in, I need help for my treatment in China, it is 18000 USD (roughly 16500 Euro) I cannot afford it on my own, and i would be ever grateful if anyone can help in any way shape or form.
Thank you for taking the time to read all this
- Manuel Muerköster
- Anoushirvan Mazloum
- Gregor Marx
- Natalia (Nat) Murachova
- Christine H
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