Vhi mini marathon for The Irish haemophilia society-

Hello everyone! since last March ozzy was diagnosed with a rare blood disorder haemophilia b with signs of bad bruising and swelling , this came as a shock to me me and Sean , we only heard of this but didn’t really understand what it was. Throughout last year we have been admitted more times than you could imagine and crumlin hospital became our safe place so ozzy could get his medication. The year was very tough as poor oz rejected the meds and this meant we were on the list for a trial drug called consuzimab, thankfully last Nov we got this and when I say it was a GAME CHANGER! not only for us but for little Oz man I was not able to run the marathon last year due to being admitted so this year I am all set to run the vhi mini marathon and I would love if you guys could spare a euro or two to help raise money for this incredible charity that has been a great support to is over the last year ❤️