My name is Emma Lacey, a twenty three year old Clonmel woman whose life has been destroyed by crippling spinal diseases for the last six years and in February of this year I was diagnosed with a serious brain condition. My life is in total shutdown as I await brain surgery in August and further spinal surgery.
A hectic life of playing music, GAA, tennis and rugby came to an abrupt halt when I was seventeen years old. After returning home from volunteering in Africa I pulled up while running around Powerstown Park. That was the beginning of my nightmare, I never ran again, never walked properly again and never lived a day without chronic pain again.
I have no life. Progressive degenerative disc disease and spinal stenosis and five spinal surgeries killed all my dreams, stole the best years of my life. A life of isolation, intractable pain and opioid medication which saw me disappear from the lives of my family and friends became immeasurably worse in February this year when I was diagnosed with a brain malformation.
The diagnosis of a Chiari Malformation means that my brain is too big for my skull. My overflowing brain is being pushed into my spinal canal blocking the flow of cerebrospinal fluid to the brain and the slow agonising paralaysis I am enduring will advance further unless surgery is carried out. Brain surgery is scheduled for Friday 24th August to be followed within weeks by a sixth surgery on my spine before attending the National Rehabilitation Hospital in Dun Laoghaire.
Over the years friends and neighbours have often asked if they can help me and my family through fundraising and now after six years of torture and the realisation that there is no end to my battle I have decided to gratefully accept their kindness and offer of support.
Funds raised will be used to build an accessible downstairs bedroom and wetroom extension which I urgently require. A fund will also be put in place to assist in meeting the huge costs involved in future medical care under neurology, orthopaedic and pain management consultants. It will allow me to avail of occupational therapy, physiotherapy, psychology and a range of services and interventions by other health care professionals. These services will be required during rehabilitation and long term care on the journey ahead as I battle to try and salvage some quality of life.
Thank you so much for your support♥️
If if you would like to know about my story please follow this linkhttps://tradmadlacey.wordpress.com/2018/07/31/my-story/Important Note:
The Emma Lacey Trust has been established to raise funds to help build an accessible downstairs bedroom and wetroom extension for Emma at her home and to assist with the costs of her future medical care under neurology, orthopaedic and pain management consultants.
The Trustees of the Trust are Paudie Everard, Christopher Quirke and Sean McKeown who are family friends but as per Section 12 of the Irish Finance Act, none of the Trustees are related to Emma.
The Trust has been authorised by Emma and the Lacey family. All donations to the Trust go directly to The Emma Lacey Trust bank account. The account details are connected to this GoFundMe account.