Hello My name is Carlos Regalado, and I wanted to start this fundraising page to help a family that Ive grown very close to. I met the Defillippo family through a charity I work with called Relentless Detroit. Their son Ryen (6 years old) was one of the Relentless kids that was sponsored last year. Relentless Detroit sponsors several kids yearly that are battling against life threatening or life altering health issues like spina bifida, cerebral palsy, or cancer (just to name a few examples). Little Ryen is up against a few diagnoses...Ryen has Spina bifida (which results in Ryen being wheelchair bound), Hydrocephalus, chiari 2 malformation, bi-lateral clubbed feet, and has neurogenic bowel and bladder. Those health concerns do not damper his spirit tho, that little boy can light up a room. Ive watched this family endure alot over the short time Ive known them from and recently 4 of their 6 children have been diagnosed with a genetic marker that usually results in hypertrophy cardiomyopathy, which is a severe heart condition that nearly cost their father (Jason)his life. Hypertrophy cardiomyopathy causes the thickening of the heart muscles which causes arrhythmias and sudden stoppage of the heart. This diagnosis is terrifying and has resulted in their son Brenden having to give up involvement in any athletics, which is very tough on a boy that loves soccer very much. Their son Nathan also is being encouraged to ease offof sporting involvement as a precaution, he is showing changes in heart muscle which is early signs of Hypertrophy cardiomyopathy. hypertrophy cardiomyopathy developing discovered by medical testing
Stacy Defillipppo (Mom) and Jason (Dad) work tirelessly to provide for their children but medical expenses and hospital stays can really put a stress on household finances. I have partnered with Stacy Defillippo (mom) on fundraising and have set up a few fundraising events. I have set the goal of 20,000$ because there are a few important items that arent covered by insurance (which i do not understand why but honestly who understands why insurance companies pick and choose what is important)
Stacy wants to acquire a pair of Defibilators for her home, for precautionary reasons and as a safety net just in case anything happens as a result of the severe heart conditions her children and husband have. Jason (dad) has already had a major scare which resulted in him losing conscienceness and having his heart stopped for 20 minutes. Its a miracle that he was revived and an even bigger miracle that he didnt suffer medical afflictions as a result of having his heart stop for 20 minutes.
Defibilators are about 1,400$ each but I am on the hunt for less expensive ones and will be contacting medical suppliers for options.
The rest of the funds being raised are going towards a bathroom remodel for little Ryen. With Ryen being wheelchair bound, it really limits his mobility through their home if doorways and restrooms are handicap accessible. Ryen recently had a major surgery to insert ports in his stomach in order for Ryen to work towards independence. It is a dream of Stacy and Jason to have a bathroom that their son can access and use. I cannot think of a more deserving family. I cannot think of a more deserving young man. So I invite you to help me....help me help them....lets bring this wonderful family a dream come true
100% of funds raised will go directly towards the listed items above and in the result of any extra being left over, that funding will go towards paying off medical expenses and financial stresses for the Defillippo family.
This family has alot to juggle and could really use a heavy dose of love and support. I invite each of you to donate any amount, small or large, and I couldnt Thank you enough for reading This far and considering supporting this wonderful family