The Cystic Fibrosis Trust - A Forever Mission

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The Cystic Fibrosis Trust - A Forever Mission

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In 2023, my wife and I welcomed our little boy, Dexter, into the world.

Three weeks later, we received a call from the hospital. The standard newborn screening known as the heel prick test had flagged something. Dexter had tested positive for Cystic Fibrosis.

Cystic Fibrosis is a genetic condition that affects the lungs and digestive system. It makes it hard for the body to move salt and water in and out of cells, which leads to a build-up of thick, sticky mucus. For people like Dexter, this means a daily routine of medication, physiotherapy, and constant vigilance, just to stay on top of his health.

But in 2025, at just 2 years old, Dexter started a new treatment: Kaftrio. It’s been called a breakthrough, a game-changer. And it really is.

For many, it drastically improves lung function, weight gain, and overall quality of life. It's not a cure, but it gives us hope. Real, tangible hope.

Every day, we’re learning. About resilience, perspective, and what matters.

So now, each year, I’ve committed to using my time, energy, and platform to raise awareness and funds for Cystic Fibrosis. Whether it’s a fundraising event, a challenge, or a quiet campaign, it will always be for something bigger than me.

Organiser

Dan Newton
Organiser
England
Cystic Fibrosis Trust
Beneficiary
  • Family
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