My world turned upside down after losing my oldest sister to cancer at the age of 33 in May 2010. I suppressed my feelings and did all I could to take care of her in her last few months on hospice. Shortly after, my health became challenged, I had a sinus infection in October 2010. I had some testing in 2011 because I lost my sense of smell and taste. By late November test revealed a large pituitary tumor and it was on the verge of taking my vision. I had surgery on Dec 16, 2011 and was released the day before Christmas only to end up in ICU the next day because I was completely paralyzed on my left side. They originally thought I was just weak from having the brain surgery. They then begin to  think I had a stroke due to the brain surgery. After several visits thru the MRI machine they determined it was not related to the brain surgery but they couldn't give me a reason. I was transferred to a rehabilitation hospital for 2 months. No answers but I was able regain some of my movement on the left side and was able to finally return home to my 2 kiddos. I was diagnosed with Sjogren's Syndrome and Fibromyalgia. After 1.5 years of intense home and outpatient therapy and was able to return to work. Shortly after returning I found out the tumor returned just as aggressive in size. I repeated the brain surgery followed by intense radiation in April 2014. This time I did not have any major setbacks and went back to work within 4 months. I kept searching for answers to this crazy and unheard of illness.  The problem with the diagnosis is my symptoms are not the classic symptoms. My whole left side is constantly in pain from head to toe and the severity never drops below a 7 on a pain scale. Beside the constant pain I deal with weakness, brain fog/memory loss, blurred vision, nausea, nerve damage, headaches and flares. The flares are severe inflammation that cause pain of 10+ with paralysis on the left side only. It mimics a stroke and I end up hospitalized until they rule it out. I never know how long it will last or what each day brings as far as symptoms. Some days I can be bedridden, on a cane, walker or wheelchair. I have had multiple surgeries since 2012 because the inflammation attacks my organs and I end up losing it. Thyroid, partial hysterectomy, gall bladder, appendix, disc replacement to name a few. I had the gastric sleeve done because the constant use if steriods caused me to gain excessive weight. I lost over 100 lbs and it made things better for about 2 years until my health began to decline due to unexplained balance issues and the constant flares. I have traveled to BSW in Killeen, UT Southwestern in Dallas, John Hopkins in Baltimore and Mayo Clinic in Phoenix for answers and no one had answers or a solution. I've tried several different medications, infusions, diets, herbal supplements, natural remedies and foods, including surgeries with no luck. I do aqua therapy 1-2x's a year just to keep my body moving and sometimes I can't get through a full 45 minute session due to the pain and nausea. My pain has gotten worse and since August I have to depend on pain medication to keep my blood pressure under control. My independence has been challenged in all areas during the last 2 years and I have not been able to work full-time. I tried part-time and was only able to make it 6 months before having to be taken off completely. Because the pain has been so bad I've been home bound with no social life during these past 2 years. My doctor's have exhausted all the traditional treatment options that insurance will cover. My desperation has me researching non-traditional options that have to be paid out of pocket. I am asking for your help in covering some if not all of my next phase in treatments. I have already had my consultation visit and have had trial testing to see if my body will respond. I was instructed not to take my pain medication so they were able to see if the treatment would work. My pain level prior to treatment was an 8. I can honestly say that I was able to see a difference in my pain levels. At one point during the treatment I felt little to no pain. My body would already be in severe pain due to not having my medication on time and the length of time I was behind on taking it. I'm very optimistic and looking forward to being independent again. This next phase will consist of 24 treatments over a 12 week span with multiple forms of therapy: PEMF therapy,  Deep muscle therapy, Neurolight therapy, Class IV laser therapy coupled with a plant based diet.  This is a huge step for me to ask for help but this journey has humbled me and I understand I can't do it alone. I've tried several times and ended up stressed and in more pain. Thank you for your prayers and words of encouragement during this medical journey. I'm so ready to live again. Forever grateful and taking nothing for granted! Ebony