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Here’s a bit about our little man, Teddy.
Teddy is our one year old son. He’s our gorgeous and happy little boy who happens to have a very complex medical background. Teddy was born with the following conditions:
Spina Bifida Myelomeningocele - This is the most sever form of Spina Bifida and means he was born with his spinal cord, brain and nerves exposed.
Agenesis of the Corpus Callosum - The middle part of Ted's brain is missing, it is a very rare condition and unrelated to his Spina Bifida.
He is registered Severely Sight Impaired (Blind).
Arachnoid cyst on the brain.
Hydrocephalus - Fluid on his brain, Ted has a VP shunt inserted in to his brain running all the way to his belly, where it drains the excessive fluid.
He is hearing impaired.
Neurogenic Bladder - Ted is not able to pass urine and needs to be catheterised every 2 hours and has a catheter connected to a bag overnight.
Focal Epilesy.
These conditions mean Teddy has no feeling from the waist down, we are told he will never be able to walk independently although he is already surpassing the expectations of the medical world. He has to be catheterised every 2 hours so that he can pass urine and he has to take lots of medications. Teddy is sight impaired and this has hugely restricted his development, we have worked hard to overcome his 'tactile defensiveness' (his fear of touching objects, especially hard textures). For a long time, Teddy would not let anyone touch his hands and he wouldn’t like to touch any hard textures, which really restricted his play and learning experience.
Teddy's mobility issues and sight impairment means he misses out on a lot of exploration which is SO important when you can’t see the world around you. Moving allows independence and getting a new perspective on things, it contributes hugely to cognitive and social development. Teddy will not be able to get help with getting a wheelchair until he is 3 years old at the earliest and this is unlikely to be a device he has control over or one suitable for play situations. While other babies are crawling and walking, Teddy will be stuck on his back or having to be held unless he can get a mobility device to support him and allow him to move with purpose and explore.
Teddy is becoming a curious, inquisitive little boy and we want to give him as many new experiences as possible so he doesn't miss out. As we are realising, he will need a lot of help on the way and there are some amazing devices/gadgets made for special needs children. These simple things can be life changing or just make his little world more enjoyable.
We’ll be doing lots of fundraising for Teddy and will keep our facebook page updated with our latest efforts.
Please Like, Follow and Share.
Follow Team Teddy on Facebook
Teddy is our one year old son. He’s our gorgeous and happy little boy who happens to have a very complex medical background. Teddy was born with the following conditions:
Spina Bifida Myelomeningocele - This is the most sever form of Spina Bifida and means he was born with his spinal cord, brain and nerves exposed.
Agenesis of the Corpus Callosum - The middle part of Ted's brain is missing, it is a very rare condition and unrelated to his Spina Bifida.
He is registered Severely Sight Impaired (Blind).
Arachnoid cyst on the brain.
Hydrocephalus - Fluid on his brain, Ted has a VP shunt inserted in to his brain running all the way to his belly, where it drains the excessive fluid.
He is hearing impaired.
Neurogenic Bladder - Ted is not able to pass urine and needs to be catheterised every 2 hours and has a catheter connected to a bag overnight.
Focal Epilesy.
These conditions mean Teddy has no feeling from the waist down, we are told he will never be able to walk independently although he is already surpassing the expectations of the medical world. He has to be catheterised every 2 hours so that he can pass urine and he has to take lots of medications. Teddy is sight impaired and this has hugely restricted his development, we have worked hard to overcome his 'tactile defensiveness' (his fear of touching objects, especially hard textures). For a long time, Teddy would not let anyone touch his hands and he wouldn’t like to touch any hard textures, which really restricted his play and learning experience.
Teddy's mobility issues and sight impairment means he misses out on a lot of exploration which is SO important when you can’t see the world around you. Moving allows independence and getting a new perspective on things, it contributes hugely to cognitive and social development. Teddy will not be able to get help with getting a wheelchair until he is 3 years old at the earliest and this is unlikely to be a device he has control over or one suitable for play situations. While other babies are crawling and walking, Teddy will be stuck on his back or having to be held unless he can get a mobility device to support him and allow him to move with purpose and explore.
Teddy is becoming a curious, inquisitive little boy and we want to give him as many new experiences as possible so he doesn't miss out. As we are realising, he will need a lot of help on the way and there are some amazing devices/gadgets made for special needs children. These simple things can be life changing or just make his little world more enjoyable.
We’ll be doing lots of fundraising for Teddy and will keep our facebook page updated with our latest efforts.
Please Like, Follow and Share.
Follow Team Teddy on Facebook
Organizer
Annie Temple
Organizer