TeamKeely
Donation protected
Meet our super star Keely!
Keely is 9 years old and is one very strong, happy and determined girl.
When Keely was 7 years old she developed a limp. Further investigations revealed Keely is only 1 of 19 people in Australia who was born with one of the rarest most disabling genetic conditions known to medicine called Fybrodysplasia Ossificans Progressiva (FOP).
FOP causes bone to form in muscles (and other soft tissue) leading to restriction of movement. It is a progressive disease that has no treatment or cure.
Keely is in year 3 at school and is a happy, strong, fiercely determined girl who fights hard not to let this disease stop her from all her adventures and happily enjoying her everyday activities.
Unfortunately Keely has a long road ahead that involves specialized doctors, travel and a lot of equipment in the future to help her live comfortably and keep her beautiful smile going.
We are planning a 12hr relay around the iconic Portland Foundations which is surrounded by stunning views and will involve a bunch of great people and an incredible atmosphere.
The loop around is great for all ages, groups, families, all fitness levels and can be done just once or as many times as you like. We would love everyone to come and join us on this extremely special day for TeamKeely.
Please follow this page for more information on getting to know our relay team, how your buisness can become a sponsor, how you can donate, event details and everything else you need to know about this amazing 24hr mission.
Please follow us, share to your facebook page or tag anyone who you think would love to apart of the fun.
We can not wait to see you there! Money raised will go towards Keely for any future needs, and a percentage to FOP Australia and Westmead Children’s Hospital.
Keely is 9 years old and is one very strong, happy and determined girl.
When Keely was 7 years old she developed a limp. Further investigations revealed Keely is only 1 of 19 people in Australia who was born with one of the rarest most disabling genetic conditions known to medicine called Fybrodysplasia Ossificans Progressiva (FOP).
FOP causes bone to form in muscles (and other soft tissue) leading to restriction of movement. It is a progressive disease that has no treatment or cure.
Keely is in year 3 at school and is a happy, strong, fiercely determined girl who fights hard not to let this disease stop her from all her adventures and happily enjoying her everyday activities.
Unfortunately Keely has a long road ahead that involves specialized doctors, travel and a lot of equipment in the future to help her live comfortably and keep her beautiful smile going.
We are planning a 12hr relay around the iconic Portland Foundations which is surrounded by stunning views and will involve a bunch of great people and an incredible atmosphere.
The loop around is great for all ages, groups, families, all fitness levels and can be done just once or as many times as you like. We would love everyone to come and join us on this extremely special day for TeamKeely.
Please follow this page for more information on getting to know our relay team, how your buisness can become a sponsor, how you can donate, event details and everything else you need to know about this amazing 24hr mission.
Please follow us, share to your facebook page or tag anyone who you think would love to apart of the fun.
We can not wait to see you there! Money raised will go towards Keely for any future needs, and a percentage to FOP Australia and Westmead Children’s Hospital.
Organiser
Team Keely
Organiser