Team Titus #fightforlifejourney

Titus has V.A.T.E.R. Syndrome. He was born July 15th, 2009. We have had a long 13 years with this sweet brave little guy. He has had 3 open heart surgeries, a bladder surgery, and recently an emergency stomach surgery due to a Gastric Volvulus. He has a radial club hand and had his thumb amputated at 1 month old.  Titus also had a stroke in open heart surgery recovery at 11 months old. He only has one kidney and an abnormal bladder. So, he has a bladder tube for draining. He has been G-tube fed due to aspirating since he was 5 months old and is in need of speech and feeding therapy. Titus is also is facing another open heart surgery valve replacement within the next few years. He has a double lower outlet right ventricle defect. His heart is enlarged, boot shaped and reversed. He is on the severe side of the spectrum for autism and is nonverbal.