Our Journey with our most precious gift,  our Son, Parker William Medeiros!  Born on 5 /15/15 @ 15:31 at just 26 weeks, a Micro Preemie, weighing a mere 1lb 12.2 ounces and 13 3/4 Inches long. We knew our Journey with our precious little guy was going to require him to stay in the hospital until he reached his due date and weighed 5lbs, as long as he stayed healthy. Of course in my mind at that particular time, I thought since he was in the hospital the chances of him catching anything he could not fight off would be so much less, boy was I WRONG! On June 17th 4 weeks & 2 days poor Parker became severely ill. He went from an almost 2lb baby to a 6 1/2lb baby in 3 hours and the swelling did not stop there, he weighed close to 12lbs by the second day. Jeff & I walked into the Pod where our Extremely Critical baby boy was FIGHTING FOR HIS LIFE, along with 50 others working on him, Doctors, Nurses, Nurse Practitioners, Respiratory Therapist, Radiology and Others I'm sure I'm leaving out.  Parker had third spaced and they were not sure why or what was causing him to become so critically ill so quick. Parker was not just swollen,  but he started turning purple and then black. He was hooked to every machine possible to help assist him with his breathing and draining fluid off of his  unimaginable swollen body. They were administering him the most powerful Antibiotics they were equipped with, which required labs daily to check the level for the antibiotic Vank and check the CRP number which indicates inflammation in the body, the CRP number does not register if its over 24, of course Parker's did not register. This is one WAY to gauge when & if he was starting to turn the corner. We were devastated, heart broken and scared for our little Warrior,  who was laying in his isolate fighting for each & every breath. The doctors told us if he made it through the night it would be a Miracle in itself.  We sat next to Parker and prayed our HEARTS OUT with our hand touching his swollen little hand. We vowed to Parker that his Mommy & Daddy would be right by his side,  that we would fight to ensure everything possible was being done to help him overcome this HORRIFIC Illness, which we still were unaware of what was causing the quick turn of events. For 9 days we sat next to our little Warrior, praying our hearts out, waiting on his labs to come back each day in desperate hope that his CRP level would finally register, well on day 10 his CRP LEVEL came back as  17.6!!  The Mommy instant kicked im full gear, I wanted a Surgeon to assess him asap,  my GUT Instinct was telling me he was not going to make it much longer,  I knew if they did not do surgrey to locate the issue and he didn't make it, I would not  be able to live with myself. Needless to say I asked Parkers Nurse Maggie, who had been Parkers nurse since bith if there was a Surgeon there and if so I wanted to speak with them, this was at 5:30 pm and normally the Surgeon's would be gone for the day, but not this paticular day, Dr. Hollands was just finishing up a emergency Surgrey and would be coming up to the NICU after it was complete. I staired at the door for 45 mintues waiting for my opportunity to introduce my self so yo speak. I had never laid eyes on this Lady before but I knew exactly who she was when she came in the NICU and at that point I walked up to her and introduced myself and immediately started to share Parkers last 9 days with her and begged her to pleasssse do Surgrey on our Baby boy to try and locate what the cause of him being so sick mind you she had never laid eyes on Parker either. I was asking this Surgeon who had never seen or heard of my Son to please help him. Dr. Hollands simply replied that this was not her standard practice and she would normally say NO until she spoke with the neurologist, but not on this day!! Dr. Hollands walked over to Parker's Isolate and assessed him, she quickly turned to his nurse and asked if she had been Parker's nurse for sometime & Maggie replied yes with that she said gown up, she looked at Jeff & I and told us she was taking him to emergency Surgery and that the Anesthesiologist would be up to explain the extreme risk of doing this surgery and the possible outcome that he would not make it through the surgery. Dr. Hollands stopped by the Neotologists office Dr. EL and said we are headed to Surgery, gown up!. Jeff & I spoke with the Anesthesiologist covered all the possible outcomes and then the waiting began....... we waited by the phone for the first update that surgery had started and he was handling it so far, we will call once we find the culprit. Hour and 1/2 passed and I felt like I had been punched in the stomach, pacing was an understatement, finally 2 hrs 45 minutes later the Surgeon & her Team walked in the room with semi smiles on their faces because first off he made it through a very serious surgery and was not stable, second she said we located the problem, Parker had developed NEC and it had caused him to develop an anurisum in his small intestine and the only way she could save his life was to remove 75% of his small Intestines, his ICV valve which helps with a major part of absorption a section of his Jillium & part of his Bowl. Dr Hollands stated he had a 10% chance to make it " live" 365 days. All we needed was 1% and she gave us that. Parker had an Anderson Tube down his throat which continuously drained bile out of his tummy around the clock for the next 7 months. The 17cm of remaining small intestines Parker was left with had to grow to about 50cm before they could do another Major surgery to reattach his small intestines. Until we reached that point Parker was grown  strictly off of TPNS Parental Nutrition. Parker had a Central Line Placed when he was 3 months old so the Tpns could administered