Mason is 3 years old and has battled since birth with TracheoBronchoMalacia which caused 100% collapse of his airway resulting in spending most his first 2 years in the ICU and on a ventilator till he had a 13 hour airway reconstruction at Boston Children's Hospital where he successfully came off the ventilator. About 10-20% of patients require anterior (front) trachea surgery to prevent any collapse 6 months post op. Over the past month Mason's trachea has begun collapsing again and on 9/14 his surgeon discovered the front of his trachea is fully collapsing causing him to stop breathing. On Tuesday, September 18th, Masons airway became collapsed and required our normal protocal of emergency interventions however this time was unresponsive are stabilizing and required 911 services to ensure he was fully stabilized. It became clear to his home team and Boston team his surgery is more critical than initially thought and he is number 1 on the priority and cancellation list for surgery that will hopefully happen in October. Children from all over the world come to his surgeon at BCH for this very condition every day. It is a very stressful time for our family to travel and remain by his side. This surgery and recovery is expected to be 5-7 days long and shorter in length than his previous operation. The past 3 years of constant medical emergencies, long hospitalizations and several operations have taken a significant toll on our family, emotionally, physically and especially financially. Dad has used all his paid vacation time for the year though has a very supportive compassionate employer and employees who help in every way they can which we are beyond blessed to have. Mom juggles 4 clients through a virtual assistant position though is only 30-40 hours a month while caring fulltime for Mason and his sisters while Charlie works many times 7 days a week. Our family has accepted many sacrifices have had to be made in order to keep up with bills and unexpected hospital trips and doctor appointments, though it is not a life we all hoped for but make the best of it. It has been a very long, traumatic road getting Mason the best care available. Mason is a fighter, his sisters, Mom and Dad will never stop fighting for him to one day have a functioning airway that will no longer require a trach or traumatic medical interventions to help him breathe. We appreciate all the support Team Mason has given since he was born and hope you can stand strong with us and help off set the additional costs that come with travel for surgeries and appointments, time off work, additional food costs when we can't leave the hospital, and giving his 4 sisters some pleasant fun activities to do as his brother recovers and help them process the scary times.
- Kathy Veccharelli
- Dottie Johns
- Melanie Maguire
Fundraising team: Team Mason (2)
Raised $1,095 from 11 donations
Raised $320 from 11 donations