
Team Malachi Finacial Support
Donation protected
This is the story of our pprom (preterm premature rupture of membranes) baby and micro preemie Malachi, born at 24 weeks and 2 days with no amniotic fluid due to broken water at 20 weeks gestation. I am Tierney Junior -22 year old mom to a one year old named Roman and now 5 month old Malachi and wife to my husband Jonathan. On Decemeber 14th 2017 at 20 weeks pregnant while at work my water broke. I was terrified and called my husband who immediately came and rushed me to the hospital where the terrible news was confirmed. I was told that there were very little chances of my pregnancy being a viable one and we were given options to induce labor and let our son pass away. I cried and begged them to keep him alive, the doctors faces were very grim. They told me I could try to keep my baby but to be aware of the slim chance of a viable baby. I was set on fighting to stay pregnant. I missed Christmas with my parents and sisters as I was on strict bed rest with only bathroom privileges and on strict orders of what to eat and things to take to keep infections away and what not, I stayed down for a month with the help of my husband Jonathan who took care of Roman and took me to my many appointments. His job wasn't so understanding after awhile even though he tried to balance it all. I had already lost my income ofcourse, things financially became pretty grim but our sons life was at stake. We applied for food stamps and held onto some tax money and shifted our focus onto our sons life, which was not guaranteed at all. Malachi had been born at 24 weeks and 2 days via emergency c section. I had been bleeding for 3 weeks and my placenta finally abrupted.The moment he came out at 1lb 9oz on January 9th a breathing tube was inserted and we were told that he basically had 20 weeker lungs and his lungs hadn't developed much at all. They didnt know what was to come and weren't able to let us know how long he would live. He miraculously had completely clear brain ultrasounds and it became clear to them he had the potential to live but they were still uncertain of many things. He soon developed NEC (Necrotizing Enterocolitis) which is a deadly disease of the intestines that hits micropreemies hardest and most frequently. He was sick for days but he overcame and proved himself strong. He was made to go without food for 3 weeks because it can be too risky with that condition to begin feeds to soon on such an immature gut especially. After the nec passed our main concerns were Malachi's repisratory state, his lungs were so damaged and he had developed severe chronic lung disease, he had an ET tube in his mouth still and although they had done multiple rounds of strong steroids they believed Malachi would experience respiratory failure so we were told to prepare to let him go after he finished his steroids because it would be too damaging to try yet another round. We were devastated. We couldn't bear the thought of this earth without our little baby boy.We had already experienced a lot of trauma yet this took the cake. We held him for hours and hours every day hoping he would just pull through. We tried to act normal and "happy" for our one year old every day.Towards the end of that it was clear that Malachi would fight and he wasnt going anywhere! He was stable and atleast here with us and we were ever so grateful. We werent sure what was to come after that and we felt a need for more resources for our son to help him move forward. We were transferred to Aurora Colorado to the Children's Hopsital where Malachi has now been since he was 8 weeks old. We were sad to leave our friends and family and terrified with our financial situation and stressed beyond measure but we knew Malachi deserved a chance and he needed to be given all that we could give him. He has come so far since we have come to Children's but he still has quite a long road. Since he has been here he has fought through 6 tracheal infections and has undergone septic workups after being septic with mssa(staph) in his blood, he has now had 4 surgeries including a tracheostomy and g tube surgery. He has undergone more procedures and life threatening events than any adult that I know. Our son is now almost 5 months old, and a beautiful gorgeous baby who also struggles daily. During his recovery from his tracheostomy he experienced an event where he was clinically dead for 6 minutes. He was miraculously resuscitated via chest compressions. We have never experienced anything worse than seeing our precious child laying there lifeless and blue. We are so thankful that he made it and that's all we have asked for up until now. We never wanted to ask for handouts we simply figured we would just try our best, but sometimes help is needed. We have been by his side without much thought of having a stable child for 155 days now. We had one month of bedrest prior to the near 5 months in the NICU and we are on the brink of bankruptcy to be quite honest. We have expenses that are on top of our usual bills as far as being out of state and paying for day to day things and getting our one year old to Billings and back when we need to be here for Malachi. We are behind on car payments and car insurance, we are behind on credit card payments and have no credit cards to use at this time. We are trying our best but it is definitely a struggle we dont even have a vehicle in Colorado and our vehicles in Billings need repairs before we can bring them here. It's so hard to apply for a job with no transportation and also knowing you probably will be fired because your son is not stable at all and you will have to walk out of shifts and you will miss work all the time for the critical care that he needs his parents around for...we have daily appointments with doctors and specialists, he has daily tests, pokes and procedures that he needs his parents for I mean he is only 9lbs. The emotional and mental toll this takes on us has been quite draining as well it takes all of our efforts to continue parenting our one year old on top of caring for Malachi daily in the intensive care unit. We dont ask for much -even $1 is generous! Anything helps! Even sharing this means the world to us and is more than enough. We thank you in advance for reading this and for joining us in Malachi's journey to health. He is a true warrior❤
Organizer
Tierney Alexandra Junior
Organizer
Billings Metropolitan Area, MT