
Team Lena and Nina- Courageous Batten Warriors
I am hiking from Portugal to Spain to raise funds for the Batten Disease Family Association, a cause very close to my heart. I care for two amazing 7 year old girls living with this rare condition. It causes them to have epilepsy and affects their ability to walk, talk, see and eventually eat. Every day I see their challeneges but their strength, positive light and unending laughter push them on. There is currently no cure for Batten disease but a lifeline like Brineura slows the progression of the disease. Access to it is limited so help me raise awareness and research to give familes like Lena and Nina's the care they deserve.
Any donation will help make an impact.
Thanks in advance for your contribution to this cause that means so much to me.
Organizer
Orla Doherty
Organizer
BATTEN DISEASE FAMILY ASSOCIATION CIO
Beneficiary