Immediately after the blood tests were complete, the urgent care doctor told me that things did not look good for Kailyn. She was below critically anemic, her white blood cell count was astronomically high, her platelets were dangerously low, and that she likely had lekemia. He insisted that we immediately make the drive to LAMC Kaiser to get her treatment started right away.
Once there we were greeted with doctors explaining that she would be getting two blood transfusions and three platelet transfusions overnight and would have a procedure in the morning. The next day Kailyn underwent a bone marrow biopsy, a lumbar puncture, the placement of her PICC line and the first dose of chemo. Kailyn was then formally diagnosed with "High-Risk B-Cell Acute Lymphoblastic Leukemia (ALL)."
Soon after the procedure she began her first full chemo treatment.
From what doctors and nurses have told us, this looks to be at least a three year journey full of treatment, doctor's appoinments, chemotherapy, and all around changes in Kailyn's everyday life.
While we hope that the majority of her medical care should be covered by insurance, we will still have to find a way to pay the pharmacy charges for her daily cocktail of medication, the price of driving to and from Los Angeles at least on a weekly basis (if not more), and also making sure that Kailyn always has access to the freshest food at home (since we won't be able to go in public for a long while). With these costs already beginning to pile up, we just hope that you understand that any amount given is sooo greatly appreciated on this fight to beat Leukemia!!
We also plan to do some updates through this platform!