About 2 years ago, Kailey started to experience symptoms of a neuromuscular disease called Myasthenia Gravis. Because the disease is rare, it is hard to find a doctor locally that has the experience to confirm the diagnosis and treat this disorder aggressively.
Kailey is 15 years old and in 10th grade. She is one of the sweetest girls you will ever meet and has a heart of gold. She is an amazing athlete that devotes herself to softball, volleyball, and weightlifting for her high school and also plays travel softball. Her dream is to become a college softball player and to become a veterinarian. Kailey’s parents are also amazing and always willing to help others out.
This year, Kailey’s disease has led to numerous hospital stays as doctors work to figure out the best treatment to ease her symptoms. Most days her eyelids droop leaving her with both blurry and double vision while also having generalized weakness and fatigue. She has had quite a few times where she has lost muscle control in her legs, leaving her unable to walk and in early April she was taken by emergency helicopter to the children’s hospital in Orlando when she was unable to breathe on her own.
During her hospital stays she receives treatments that help temporarily, but doctors believe she now needs speciality treatment available in Philadelphia. Doctors there will hopefully be able to provide a treatment plan for Kailey in which she can manage her symptoms continuously and resume her normal activities with her peers. The hope is to go into complete remission with the right interventions.
We have started this Go Fund Me to provide financial support for Kailey’s parents, Morgan and Melissa. They have already made countless trips to doctors and hospitals throughout the state and over the next few days and weeks there will be many more doctor appointments. Once the logistics are worked out, Kailey will hopefully be traveling to Philadelphia to get the best specialized treatment for her disease.
Your donation will enable Kailey’s parents to pay bills for care that has already been received, afford the trip to Philadelphia, while also keeping up with their everyday expenses. Then they will be able to concentrate on Kailey and getting her well.
We thank you for your support of this awesome young lady and her wonderful parents. We also ask for you to share this link with friends and family that might be able to give (any amount helps)
You can read more about Myasthenia Gravis by following this link to a page on the website at the Children’s Hospital of Philadelphia (CHOP) where Kailey will hopefully be able to go for treatment.