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Team Jarod and Team Caleb

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This is the story of the Mulder family, the one that sent shock waves through the Hudsonville community. Jarod who is sixteen years old, and Caleb who is eleven years old, have a disease that is called Sanfilippo Syndrome. Both boys were diagnosed in 2011. Sanfilippo Syndrome is a very rare genetic disease.  Although it explains all of the challenges and delays Jarod has struggled with through his life (Caleb isn't exhibiting as many symptoms yet), it also means that their futures are grim.  Children with Sanfilippo Syndrome typically don't live beyond their teen years.  The Mulders are blessed that the boys still have as many skills as they do for their ages, but they will slowly lose their ability to speak, walk, eat, survive. There is no cure for Sanfilippo Syndrome.  And there are currently no viable treatments. Amidst the pain that the whole family has been through all of them are still able to give off a feeling that just wants to make you smile. Both boys are very much into sports, they are full of energy. These boys give off so much happiness to this community and it's time to return that favor. It is beginning to get difficult for Jarod to get around. The Mulder family recently had to put money toward a car to help Jarod because it was getting nearly impossible for him to get in and out of Mark's (the father)  1995 Ford Explorer. What we are trying to do with this gofundme is to raise money toward a newer car that would be even better for Jarod and Caleb in the future. Also, the family has been patching up a roof that needs to be replaced. That can cost thousands of dollars and for any family that alone can be difficult. Our all-time goal is to exceed the amount that is being asked for and help the Mulder family as much as we possibly can. Every member of the Mulder family is a selfless, caring, fun-loving person, this fund would help them for years to come. Mark and Tina Mulder started a soccer program for kids with special needs about six years ago and volunteer their time to that. They also started a non-profit organization three years ago and have been putting on fundraisers and then offering financial assistance to other families of children with Sanfilippo Syndrome. Tina has also started a website that goes much more into depth about what their family has been through and more about the disease itself. Reaching and exceeding this goal would mean the world to this family.

http://www.sanfilippohopeinitiative.org/





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    Organizer and beneficiary

    Shane Carlon
    Organizer
    Hudsonville, MI
    Tina Mulder
    Beneficiary

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