Our TBCK Warriors, and our community are READY FOR RESEARCH! Help us understand TBCK syndrome with a natural history study. We're raising funds to collect and analyze data on each of our unique TBCK Warriors. Understanding each case of TBCK Syndrome is step one on the road to a treatment. First we need to understand TBCK Syndrome, then we can figure out how to make things better for each TBCK Warrior.

You can make a difference by donating today to The TBCK Foundation.

We are dedicated to serving families impacted by TBCK Syndrome through accelerating patient-led research, advocacy, education, and a dynamic system of support. In our TBCK Community, NO ONE Fights Alone.

WE ARE TBCK.

WE ARE READY FOR RESEARCH.

ARE YOU READY?