Hey,

My name is Anthony Noden and i am reaching out as far and wide as possible to help my brother Taylor.

My brother was born on 20th of May 1993 and has suffered from a condition know as ALAGILE SYNDROME (ALGS) which is a rare genetic disorder that primarily affects the liver and heart but can also impact the eyes, bones, kidneys, and nervous system.

He is constantly in and out of hospitals and a regular visitor to KINGS COLLEGE IN LONDON .

He has had 2 liver transplants at a very early age and is now in need of a kidney transplant

He currently has dialysis 3 times per week but slowly one of his kidneys is now failing.

He is losing weight because of the dialysis and his liver complaint.

He cant read or write due to a stroke, he has Rickets in his right leg and has a limp, His eyesight has deteriorated substantialy due to vomitting, He is peg fed 3 times a day.

The list for a transplant is very long on the NHS so we need to go private as soon as possible.

Specialists back in the earlier years said he would not make 10 years of age, 20th May 2025 was his 32nd birthday!

He will never be a normal lad living a normal life and is slowly giving up hope.

He just wants to live a normal life as possible,.going out, playing basketball and enjoying life.

My mum has been a full-time carer from day 1 and is now struggling as she is now 75 years of age..

Neither have really lived the last 32 years as always in hospital or waiting for appointments.

No holidays or no enjoyment in general.

It's really taken its toll now..

We need change..

My brother really is on borrowed time, So if you can help make a change please do.