Tayden's battle with CDH

Baby Tayden was diagnosed with CDH ( Congenital Diaphragmatic Hernia). This is a life-threatening birth defect where the diaphragm does not form properly and allows other organs to move into the chest cavity. I found out about Tayden's right side CDH at 17 weeks pregnant. Tayden's liver and intestines moved into his chest and caused his heart to shift over. When I first found out I was back and fourth to Houston because my Dr. referred me to Texas Childrens Hospital. I relocated from Alabama to Houston, Texas on July 1,2019 to make sure I was in the area incase he decided to come early. When I first arrived it was no rooms available at the Ronald McDonald House, so I had to pay for a room out of pocket. Tayden was born on July 17th, and underwent repair surgery when he was only 2days old. He was on ECMO for 5days. Tayden was also on the ventilator, oscillator, CPAP, and high flow to help his lungs. Tayden right lung was the size of a walnut when he was born. We also found out Tayden has right vocal cord paralysis and he silently aspirate on thin liquids. Just when we thought we was on the way home Tayden had a ECHO of his heart done and we found out he has pulmonary stenosis and needed another procedure done ASAP. Tayden went to the cath lab on Oct 14, 2019 for the procedure and made a turn for the worst. Tayden got two stents placed. I recieved a call from the doctors saying things didn't look so good. My baby was only 10lbs, but with the fluid from fluid over load he was 15lbs. They immediately upped his Lasix to try to get the fluid off of his lungs. They also had to put him in a coma because he was fighting the vent. They tried to extubate Tayden several times but his little body couldn't handle it. Things continued to get worst because Tayden started to have thick white secretions and had to be started on a med called Mucomyst to help make those secretions thin. Tayden eventually got better, but struggled to eat by mouth and gain weight because he always spit up. We tried several different things including the NJ tube and erythromycin to help speed up his gastric mobility. It's very hard for Tayden because he also have really bad acid reflux. Tayden's immune system or respiratory system cant fight off sickness easy and anything as simple as a cold will cause him to be put on respiratory support. After 132 long days in the NICU Tayden was discharged and back at home in Alabama on November 26. As we were preparing to go to Texas for Tayden's follow up appointments and for his stents to be ballooned, Tayden became ill, I noticed him struggling to breath, I notified Texas Children Hospital and they told me to take him to the Children's Hospital of Alabama. Tayden has now been in the hospital since January 5, 2019 for respiratory failure. Tayden still has a long road ahead of him. As you can see, this is an overwhelming situation that I have to face. Anything helps even just a share. Please imagine this as your child and having to leave your job, your family, your older son, and your state to have every minute with your baby not knowing the outcome. Unfortunately, there are many added expenses that go along with caring for a CDH baby like Tayden. On top of medical expenses, copays, and deductibles there is the cost of travel to and from Alabama to Houston, Texas, food expense, lodging, and the unknown of time away from work. I have been unable to work or return to work since June 2019.We thank everyone that will donate and shared this. From the bottom of our hearts we are truly appreciative. Any donation is greatly appreciated, and prayers for Baby Tayden are especially welcome! Thank you so much!! #TAYDENSTRONG #TEAMTAYDEN