Help Tamzin get treatment for ME - CFS.

Giving Hope to a 17-Year-Old with Myalgic Encephalomyelitis, also called Chronic Fatigue Syndrome or ME/CFS.

Hi my name is Caroline. I am raising funds for my niece Tamzin, whose life has been put on hold because of this life limiting illness.

Tamzin, my remarkable niece is fighting a daily battle against Chronic Fatigue Syndrome (CFS). CFS is a debilitating condition that is destroying Tamzin's quality of life, leaving her trapped in a world of extreme fatigue, cognitive impairments, chronic pain, light and sound sensitivity, anxiety, and sleep disturbances.

Tamzin's Daily Struggles:

Imagine, for a moment, what it would be like waking up every morning feeling as though your entire body weighs a thousand pounds.

The simplest tasks become monumental challenges, leaving Tamzin exhausted and in constant pain. Instead of experiencing the joys and adventures that being a teenager provides, she is confined to her bed for most of the day, unable to engage in activities that many of us take for granted. Tamzin gets the occasional day whereby she can go out however these are few and far between and cause post exertional malaise which can mean those precious times she can go out cause her 2-3 days feeling so poorly and unable to get out of bed.

Unfortunately, no effective treatment options are currently available in the UK. We are reaching out to you today in desperate need of your support to raise £14,500 towards the only treatment available in America and the associated costs of getting her there. 

I have personally through a skydive rose £5000 minus expenses and charges, meaning are target figure on this page has been brought down to £14,500 it was £18,000

Our Hope:

After extensive research and consultations with experts, we have identified a breakthrough treatment for CFS available exclusively in America. This treatment offers a glimmer of hope for Tamzin, providing a much-needed chance at regaining control over her life. The process includes specialised therapies that have shown significant improvements in patients with CFS.

Your Support:

To make this life-changing treatment possible, we must raise £18,500 to cover the cost of the treatment itself, as well as the expenses associated with traveling to America. We cannot stress enough how much every donation matters and how your generosity will make a tangible difference in Tamzin's life.

Our heartfelt request is for you to contribute what you can to help fund this journey towards recovery for Tamzin. Every pound gets us closer to our goal and brings hope back to Tamzin's life.

Together, we can make an impact, transforming Tamzin's world from one defined by chronic exhaustion and despair to one of hope and possibility. Your support means everything to Tamzin and our family. Join us in making a difference today.

Thank you for your kindness, compassion, and unwavering support.

With profound gratitude, Tamzin and family x

A message from Tamzin:

"In February of this year, I was diagnosed with Myalgic Encephalomyelitis (me/cfs) and a year ago today I never would’ve thought that my life would be impacted in the way it has. The universal definition of ME/CFS is that it’s a complex and systemic disease associated with neurological, immunological, autonomic and energy metabolism dysfunction and it started for me in late 2022.

I remember waking up and feeling unrefreshed after 10+ hours of sleep and not being able to stay awake through the day (I relied on naps) I also had bouts of insomnia. Shortly after Christmas I began having scary neurological symptoms like not being able to form a sentence, brain fog, anxiety, slurred words and severe fatigue that didn’t get better with sleep.

A few weeks after this I became bed ridden, my body felt like lead, I struggled with post exertional malaise and walking down the stairs became an achievement. On bad days I wear sunglasses in the house because I can’t tolerate light, on average I spend 20 hours of my day lying in bed and on good days I do my makeup to feel like myself. Fatigue is not the same as being tired. For me, it’s having the lowest quality of life. It causes me to have orthostatic intolerance which means sometimes I can’t sit myself up.

I didn’t write this post for sympathy and well wishes but more so to advocate for myself and those who can’t. ME/CFS has no cure, no treatment (in the UK) and little publicity in comparison to other chronic illnesses. Currently there is a 5% chance of recovery and it’s estimated that only 0.2 to 0.4% of the population have it. ME/CFS is a severely debilitating condition that’s unpredictable and disabling. If there’s any message you can take away from this post let it be that we often take for granted the things that deserve the most gratitude, I 100% took my healthy life for granted and learning how to live in a broken body is a never-ending journey. My body may have come with a lot of terms and conditions I didn’t agree to, but I still try to find happiness in the little things.’’

TREATMENT

Donald A. Rhodes, D.P.M., F.A.C.F.A.S  

Dr. Rhodes was educated as a podiatrist in Ohio, and opened his practice in Corpus Christi, Texas, in 1973. For many years, he performed complex foot surgery in addition to typical podiatric care.

While treating a post-surgical patient who had developed CRPS (Chronic Regional Pain Syndrome), he discovered that there were little to no treatments available to treat this painful and debilitating condition. 

Long fascinated by electro-medicine and its healing effects on the body, Dr. Rhodes began researching electro-stim for his patient. Eventually, he was able to help his patient achieve remission and word began to spread among other RSDS sufferers who had tried other treatments for their diseases and conditions with little or no results. As a result of this “word of mouth” referral, many people with diseases and conditions unrelated to RSDS have requested treatments at the clinic.

 

For many years, the only way to receive treatment was to come to his clinic in Corpus Christi. Patients would have to stay for many weeks, sometimes months, at a time in order to achieve remission. 

 

Through trial and a lot of error, the VECTTOR Therapy system was born. With VECTTOR Therapy, patients are now able to come to the clinic for just a few days of testing, treatment and training on the system. Most patients are here for one week, before returning to continue their road to recovery in the comfort of their own home.  

In 2014, After more than 40 years of practicing in Corpus Christi, TX, Dr. Rhodes moved his clinic to the Houston area to allow him to focus on clinical trials for the VECTTOR Therapy System.

Dr. Rhodes now spends his time caring for patients with chronic pain and other conditions including CFS, improving the technology of the VECTTOR system, and working with other medical professionals to research and develop this promising method of treating the human body.

The VECTTOR Therapy System 

What is VECTTOR Therapy?

 

VECTTOR treatments are a form of electro-stimulation based upon acupuncture, physiology, cellular physiology, and anatomy designed to stimulate the nerves to produce certain neuropeptides essential for optimal functioning of the body. These neuropeptides are vital for increasing circulation to the skin, bones nerves, muscles, and for reducing oxidative stress. The VECTTOR system is designed to read feedback from the body via skin surface temperatures, throughout the treatment process.

While the testing phase of treatment is running, VECTTOR is constantly monitoring the skin surface temperature looking for an increase in temperature indicating an increase in circulation. VECTTOR runs through a series of frequencies, looking for an increase in skin surface temperature of at least 1 degree Fahrenheit. Once VECTTOR determines which of the various frequencies created the best response, it will automatically run that frequency for the duration of the treatment.

At the conclusion of each session, if an adequate skin surface temperature was not obtained, VECTTOR will prompt the user to request a new treatment protocol. This ensures that the user is optimizing each treatment by only contuining with protocols that are eliciting a sufficient response.

 

Requesting new protocols is easily done through our patient portal, which is available 24/7 on our website.