Please help Isla beat CF

I am trying to raise money for my 7 month old daughter, Isla, who suffers from cystic fibrosis. When Isla was born by c-section her stomach was enlarged and she was rushed straight off for an X-ray. I was then informed by doctors that my beautiful newborn baby girl needed urgent surgery. Isla underwent a 9 hour operation at just 1 hour old. During surgery Isla had 30cm of her bowel removed and the bottom half of her gut, she was then was transferred to intensive care. A few days later the doctors requested a meeting in which they informed me that my daughter had meconium ilus and cystic fibrosis, My whole world was turned upside down, I was devastated. Isla spent the first month and a half of her life in hospital. We were finally allowed to bring Isla home but it wasn't long before she was admitted back into hospital with a bad case of Bronchiolitis. Isla has been in and out of hospital since she was born and will continue to do so for the rest of her life as she has a weakened imune system and is therefore prone to catching colds. A common cold can be extremely severe to Isla as it will likely progress into a chest infection and this can cause permanent damage to her lungs. Isla had chest X-rays after her bad case of Bronchiolitis, her lungs are already starting to show changes and this terrifies me. I currently perform two manual physio sessions on Isla each day to try and loosen the mucus in her lungs and keep them as clear as possible. The amount of daily sessions she requires will gradually increase as will the difficulty. Imagine having to pin down a child numerous times a day to pat them hard all over their chest, back and sides for half an hour at a time. I am trying to raise the money to get her a physio vest and other equipment that can help with her physio to try and keep her lungs as clear as physically possible to buy her more time.

Thank you for taking the time to read Isla's story and please wish her luck.

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Organizer

Laura Howdaz Özder 
Organizer
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