Hope for Christian
Donation protected
On March 11, 2019, our family finally got answers to why our beautiful Christian wasn't developing normally. He has an extremely rare X-linked inherited disorder called Allan-Herndon-Dudley Syndrome .
It is unlikely that Christian will ever speak or walk.
My sweet sister and her amazing husband will now need to navigate the world in a new way. Because this is so rare (only 2 other children have been treated at Sick Kids), they have no guidance of what to expect next, no foundation, no on-line support group.
But they have us, our family and friends, who can help.
We know that Christian will require extensive physio and specialized equipment as he grows, and we're hoping to raise $10,000 before he turns 2 in order to assist.
Please consider giving any amount.
xoxo
Team Christian
For more information: https://rarediseases.info.nih.gov/diseases/5617/allan-herndon-dudley-syndrome
It is unlikely that Christian will ever speak or walk.
My sweet sister and her amazing husband will now need to navigate the world in a new way. Because this is so rare (only 2 other children have been treated at Sick Kids), they have no guidance of what to expect next, no foundation, no on-line support group.
But they have us, our family and friends, who can help.
We know that Christian will require extensive physio and specialized equipment as he grows, and we're hoping to raise $10,000 before he turns 2 in order to assist.
Please consider giving any amount.
xoxo
Team Christian
For more information: https://rarediseases.info.nih.gov/diseases/5617/allan-herndon-dudley-syndrome
Organizer and beneficiary
Sarah Rancier Kurash
Organizer
Toronto, ON
Katherine Donaldson
Beneficiary