We are now going on 4 months since finding out Rosalee Jo (JoJo) has a DIPG/DMG BRAIN STEM TUMOR, with no cure and a 0% survival.   JoJo is getting ready to start her first trial drug treatment on 7/11/2023, she is totally dependent on her mother for everything.  We are finding that she needs extra things to help make taking care of her easier for JoJo and her mom.  So this go fund me is still to help Sydney pay bills but also for things JoJo needs, she has trouble sitting up in her own, so she needs upgrades to her wheel chair, a bigger car seat that can hold her with a 5 point harness, and for future expenses that we don’t ever plan for in advance!  If you can donate we appreciate it!

Ok everyone, so this is what’s going on.. UPDATE:3/22- JoJo had a rough night, she was throwing up all night, today so far she can not sit up on her own, struggling to hold her head up, her facial muscles are really off when she try’s to talk, they wanted to put her in pull ups and she refused, so they are going back to training panties, they are going to do a CT scan to make sure it didn’t move, no bleeding, check on swelling. The surgeon said this is to be expected, and also told Sydney this is why we can not remove it, imagine what she would be like if we took it out.  She is screaming she wants to go home.. I’ll let everyone know how her CT scans!! PRAYERS please! And thank you everyone that reads her story and donates. Sydney is beyond grateful. This is just the beginning. 6:03pm-JoJo CT scan came back the same no changes, she is able to speak, can not sit up, stand or walk at all on her own.  UPDATE: 3/21-JoJo is out of surgery and in recovery, the surgeon said that everything went well, it took longer than expected because they wanted to make sure they had enough of a sample, so they were waiting on pathology to confirm they had a good sample, they did find abnormal cells and that is how they know they got what they needed… now we wait..   Doctor said when Sydney takes her home to spoil her, go have fun do what she wants to do! When treatment starts she won’t be having much fun.  STORY: Sydney mom to 4yr old JoJo, noticed a week ago JoJo was not acting like herself, so on Sunday 3/18 she decided to take her to the ER at children’s mercy when she was having trouble keeping her balance to walk, they did a CT scan and found a tumor, they transferred JoJo to the main campus and did an MRI, she has an aggressively rare brain stem tumor in the middle of her head to the right of her brain stem, they are running a biopsy on JoJo on 3/21, they don’t have a name for it, it is not able to be removed and Sydney is still waiting for the team of doctors to put together a treatment plan. Sydney is a mess and doing her best to smile and take care of her daughter, but at the same time, she isn’t going to be able to work, so we are trying to put this together to help her know she will have a place to take JoJo home when she gets to leave and start this long crazy journey. Help comes in many forms, helping pay her bills, bringing her dinners when she is just exhausted and can’t, sending care packages, maybe a ride, maybe come sit with JoJo and/or beau when needed.. but mainly to pay the few bills to keep her house going. They also told Sydney that of JoJo needs to be transferred to a different state to be treated like she has to go when the time is set, it’s not something you can just reschedule and do later! So everything is crazy right now, she apologizes for not responding to everyone. We will try to keep updates coming as we get them.