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Sweet Emily needs Wheels

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Hi everyone! This is my amazing theater friend, Rachel and her daughter, Emily. Emily has a rare disease called Niemann-Pick type C which makes mobility a big challenge. For the last year they have been unable to take her anywhere because her van needs a new transmission.  Rachel and her husband also have two amazing little boys that you may have seen on the stage in Miami.    You can learn more about this rare progressive disease here: https://rarediseases.org/rare-diseases/niemann-pick-disease-type-c/

Rachel has been busy sewing masks to try to make some extra dough to get the van on the road but it would be awesome if we all could pitch in anything to help her get the van fixed. It would be a blessing for them to spend their family time together while giving Emily some on the road experiences. 

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    Organizer and beneficiary

    JOANNA DERFELT
    Organizer
    Baxter Springs, KS
    Rachel Sanda
    Beneficiary

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