Help Cayenne with accessibility please!

Hello!

My name is Lori and I am looking to raise funds to help provide my grandaughter, Cayenne, with a handicap-accessible bathroom.

Cayenne is a beautiful bright sparkling young woman who was diagnosed with Ataxia-Telangectasia (www.ATCP.org) when she was 2 years old. This is a progressive childhood disease that is extremely rare.

When Cayenne was first diagnosed, she could still walk with a wobble and would fall frequently. As this disease has progressed, Cayenne has lost a great deal of muscle tone and there is no longer any way for her to walk without someone bearing her weight and balance from behind. This disease has a bad prognosis and we have seen a lot of progressions which include some muscle atrophy and severe scoliosis among other things.

To me, the cruelest aspect of this disease is that Cayenne's mind is clear. Cayenne is a 16-year-old teenager with all of the thoughts, hopes, hormones, embarrassments, loves and dreams as any other teen. I would trade places with her in a moment.

SO - Cayenne, her little sister, and her single mom live in a "fixer-upper". When Cayenne was younger and lighter and easier to help, we would guide her or carry her into her little half bath in her bedroom - this is an older house and nothing is accessible. If Cayenne needs to bathe, her mom needs to carry her from her room to the only other bathroom in the home, which is outdated, falling apart and with a bathtub and shower in a sad state of disrepair. https://youtube.com/shorts/grp69zmpS5Q?feature=share

There is no cure for A-T. There is no particular therapy or medication, what we CAN DO is give her the ability to take a nice hot bath or take an accessible shower so that she can bathe with dignity and privacy as any 16-year-old would expect. She needs a sink that she can use by herself in her wheelchair without someone having to prop her up and hold her. I want to give her an accessible toilet!! Can you imagine not having a toilet you can use independently? I want her to feel like, at least in one area of her life, she can have privacy and dignity and comfort. When I asked her if she would like this to happen, she asked if she could get a heat lamp in the ceiling so she wouldn't be so cold. Okay, Cayenne.

The funds will be specifically and only used to improve this bathroom situation for Cayenne. The estimates have come from a long-time local and much-trusted business that is giving their very best pricing. I am so grateful for your help - this will mean the world to Cayenne. https://youtube.com/shorts/grp69zmpS5Q?feature=share