Hi!

My Daughter Sophia was born with a rare bone disease called Fibrous Dysplasia. The diseased bone has damaged the nerve of Sophia's eye, and she now needs to have another Craniotomy and optic nerve decompression to prevent any further vision loss. We appreciate any help we can receive towards Sophia's treatments and care. Sophia is scheduled for surgery January 9th, 2023 at Boston Children's hospital where we will need to stay for the week. We hope to continue to have our friends, family and communities support as we help Sophia thru this journey and fight to get her the best care possible. Please keep Sophia in your prayers as we navigate this difficult disease.