In early February of 2022, Jreyden Saribay Gamiao was diagnosed with Metopic Craniosynostosis — A deformity that occurs in 1-in-10,000 children. This diagnosis indicates that one or more of the fibrous joints between the bones of your baby's skull (cranial sutures) close prematurely (fuse), before your baby's brain is fully formed.
When Jreyden was 3 months old, our family noticed he had formed a ridge. At first we just brushed it off and assumed that he would grow out of it; and at his monthly check-ups it was never pointed out by his doctor, so we did not think anything of it. As time passed, we noticed that this ridge had not gone away, but in fact became more prominent. On February 4th, 2022, at Jreyden’s 6 month check up, Jessica, (his mother) decided to bring it up as a concern as it was not reducing in size. When the pediatrician did take notice, she decided to refer us to another doctor who is a surgeon in plastic surgery. On this same day, an X-ray was taken to be used for consultation. The surgeon explained that by the looks of his x-ray, it was certain that Jreyden’s cranial sutures had fused at an early age. However, they were unable to dictate just by the x-ray if Jreyden’s brain would be affected in the future.
On March 24, 2022 Jreyden went in for a sedated CT scan of his head. The next day, Jreyden and his parents met with the Multidisciplinary clinic which included meeting with a Neurosurgeon, Plastic Surgeon, Audiologist, as well as a Developmental-Behavioral Specialist. After meeting with the clinic, we were told that there is no certain way to determine if this condition would affect his brain. The only way we would be able to tell if it was affecting his brain was over time. The panel has recommended that surgery should be done before Jreyden turns 1 years old in July of 2022. The parents of Jreyden have decided that it was in his best interest that they should do the surgery as soon as possible. In addition to surgery, Jreyden has qualified for early intervention for his development, but may also need to partake in occupational therapy and physical therapy post-surgery.
This GoFundMe is started to raise funds for the surgery, post-surgery care and to assist in any medical-financial burdens that may occur in the future regarding his needs. We are grateful for our family and friends who have asked us to make this GoFundMe to donate for Jreyden’s surgery and aftercare. However, if you are unable to donate, we would greatly appreciate your thoughts and prayers, and sharing this post.
