My son Brian Vázquez has a rare disease that is called Perry Romberg Syndrome. It says away at the bone and kills the tissue acting like bone cancer. It causes extreme pain he suffers constant headaches and now his nose has collapsed and he has difficulty breathing. My son requires major facial reconstructive surgery and I can't do it all. This is incredibly difficult for me to ask for help but this is where we're at. He's suffering and I'm a mom in desperate need of help.