Supratrochlear Neuralgia Research and Treatment

Update: 01/09/2023

Hello everyone,

I just wanted to say thank you for your generous help. It has been over a year since I had my Microvascular Decompression surgery and I'm happy to report that I've received some relief, however, I am in the process of getting another Fiesta MRI to see the work that can be done with a follow-up Microvascular Decompression surgery. I will report back once I have more information.

Thank you everyone for your generous assistance!

Original Post:

Hello, I am raising funds to help pay for the Research and Treatment of Supratoclear Neuralgia. 5 years ago a surgeon accidentally cut into the Supratoclear Nerve in my face and has left me with an unbearable, never-ending, agonizing pain in my face that never stops hurting. I have been unable to work due to this, even after trying dozens of different medications, I have consulted with 6 different neurosurgeons in California and they have all told me they can't help me. We've tried many different treatments such as multiple nerve blocks, injections, physical therapy,  and acupuncture/acupressure. You can read more about this condition here (Trigeminal and Supratroclear are part of the same nerve cluster and the pain they describe is the same as mine): Life with Trigeminal Neuralgia — the ‘Suicide Disease’ https://medium.com/@parkydoesstuff/life-with-trigeminal-neuralgia-the-suicide-disease-a8f3608fd617 There are doctors here in Oregon (I moved recently) and in other places in the country that have offered to take a look and one doctor is willing to do radiation treatment on the nerve to hopefully deaden it. I am however left with about 6000 in medical debt from previous treatments and all of the remaining treatments are experimental and not covered by insurance. They range from 2000 - 4000 dollars for these treatments. My 12 months of short-term disability ran out on May 15th, leaving me in a precarious financial situation. I am hoping to raise enough money to pay rent while I research treatment and find a doctor that has a solution for me. Thank you for taking the time to read this, I appreciate you.

Love and light,

Curtis McHenry (LoveDiodes)