Sweet and beautiful Mazie Jo Marley was born at just 33 weeks on May 30, 2023 at 6:17pm!

In utero they confirmed that she carries the same disease as her older brother Oliver, which is called S-adenosylhomocysteine hydrolase deficiency (SAHH). Mazie was the queen of sass! Making her family laugh everyday with the huge personality she had in her little body! Mazie also loves cows! Her picu team currently bought her a cow to cuddle with as she transitions into heaven. She was so bright, bubbly and extremely strong willed! We are so proud of every single thing she did!

With prior knowledge before delivery, the marleys had an amazing plan for Mazie’s medical care. Linking multiple hospitals and specialists since her disease is so extreme rare. Over the last 10 months, new and unheard of complications arose but the Marley’s were at the front line helping doctors work tirelessly to find solutions. The last week of March everything changed suddenly. Mazie is currently in heart failure. Doctors are anticipating her transition is very soon.

soon she will be reunited with Jesus and her big brother Oliver who also passed away from this disease.

She fought so hard everyday and taught so many people what truly matters in life! Mazie lived a beautiful life surrounded by nothing but unconditional love and support. What a blessing it is to know and love miss Mazie Jo

I will update after she transitions ❤️‍

if you find it in your heart, please donate any amount to this beautiful family during this gut wrenching time.