Dear Friends, Family, and Community,

We are writing with heavy hearts to share that Susie’s ALS has progressed rapidly. Only beginning testing a few months ago and being officially diagnosed December 5th. She is now fully bedridden and receiving full-time, in-home hospice care. During this time, Matt has become her full-time caregiver, dedicating himself completely to her comfort, care, and dignity.

We are deeply grateful to have health insurance, and much of Susie’s direct medical care is covered. However, there are many significant expenses that insurance does not address. These include lost wages for both Susie—who continued teaching until the end of October—and Matt, who has had to step away from work to provide full-time care and attend medical appointments. In addition, a second 24/7 caregiver is now required to support Matt and ensure Susie receives the constant care she needs, and this assistance is not covered by insurance.

Disability benefits have been applied for, but we are currently in the waiting period before they begin. We are also trying to prepare for upcoming needs, including Susie’s funeral and a celebration of her life.

Asking for help does not come easily, but we are reaching out with honesty and humility. If you are able—and only if you are able—please consider giving whatever you can comfortably afford. Any support will help cover caregiving expenses, lost income, and end-of-life needs, allowing Matt to focus fully on being present with Susie.

If giving is not possible, we completely understand and are profoundly grateful for your prayers, kind thoughts, and well wishes. Your support in any form means more than words can express.

In the rare event that funds remain after all expenses are met, any excess will be donated to the Arizona ALS Foundation in Susie’s name, to help support others facing this disease.

Thank you for your compassion, generosity, and love during this incredibly difficult time.

With heartfelt gratitude,

Matt and Susie Bailey