Supporting Macee as she battles Breast Cancer
When I think of breast cancer, I think of women over 50...women like me. Never in a million years did I ever think that my 26 year old daughter would be battling breast cancer. No matter how many times I hear the words “your daughter has an extremely aggressive type of breast cancer - invasive ductal carcinoma-triple negative,” I still just cannot believe that it is real. How can a 26 year old have not one, but two cancerous tumors in her breast?
For Macee, this is all very real. Her life is on pause for now, she has to gather all of her strength and resources in order to beat this stupid cancer. I wanted to write something to share her story with you, but I believe that Macee’s own words are so honest and empowering.....
“Hello world.
I am here to share my story, not for your sympathy, but to finally accept this nightmare that is,in fact, my reality. My hope is to spread awareness to others. My name is Macee, I am 26 years old, and on 10/8/2020, I was diagnosed with Breast Cancer.
On 9/12/2020, I discovered a lump on my left breast. My initial thoughts were “what is this? Is this breast cancer? Is this really happening?” but I tried to stay optimistic and not fall too deep in searching the internet for answers. Most of the information that I did find stated that it was most likely a fibroadenoma-a noncancerous breast tumor very common in young women-and that I’m “too young” to have breast cancer. My doctor, the ultrasound technician, the biopsy doctor, and all the nurses I encountered between 9/12/20 and 10/8/20, all believed it would be a fibroadenoma. However, I knew that I NEEDED to be 100% sure, so I kept pushing and advocating for myself to get that 100% positive diagnosis that this lump was truly in fact a fibroadenoma. I’m glad that I never stopped pushing. I could have said “okay, if you think it’s nothing then don’t worry about it, I’ll call back if it doesn’t go away.” I could have listened to all the doctors beliefs. I could have left it alone and forgot about it. I am so glad that I did not.
On 10/8/2020, my doctor was standing in my special education Pre-K classroom to give me my results. My doctor came to my work.!! As soon as I saw him I knew it was not going to be good news. He told me that I had “infiltrating ductal carcinoma”, better known as IDC. I was in shock. When we called my mom to tell her together, I was still in shock. But this was only the beginning of my horrible nightmare.
On 10/12/20, I saw the surgeon to discuss what my breast cancer was and the procedure that needed to be done. However, at this appointment, my surgeon found another lump. It was a bigger, deeper lump, one that I could barely feel. Due to the discovery of this lump, the procedure that was originally planned (a lumpectomy), was no longer going to happen. We were now looking at a mastectomy of my left breast and beginning chemotherapy. However, we still had to wait for the test results.
On 10/14/20, I had a breast MRI and a CT scan. Then on 10/16/20, I had the 2nd lump biopsied, 17 lymphnodes removed, and my portacath put in. Even after being poked, prodded, and having a foreign object placed under my skin that ends just above my heart, I was still in denial. I still could not fathom that I had Breast Cancer. I am only 26, I’m healthy, I wasn’t sick, I felt “normal”, and yet here I am. The unknown is the worst. Not knowing what type of surgery I am having. Not knowing what type of chemo I will be taking. Not knowing what to do for my job. Not knowing what to do for my life.
On 10/21/20 I received the results for the 2nd lump, which is now known as my 2nd tumor. It is also IDC and is a triple negative breast cancer, which in simple terms means extremely aggressive. I was also told that on the Nottingham scale (scale of aggressiveness, 0 being least aggressive, 9 being the most aggressive) I am a 9. A 9!!??!! Fear and disbelief are the emotions I feel the most. I cannot believe this is happening. My doctors also cannot believe this is happening, especially because the genetic test for the breast cancer gene came back as negative. Therefore, my doctors call my tumors “really bad luck tumors.”
On top of all of this, I am currently undergoing fertility treatments to harvest and freeze my eggs because the chemo treatment I will be receiving will most likely cause infertility. I only get one chance to do this because they want me to start chemo ASAP due to the aggressiveness of the tumors. I will be starting chemo on 11/10/20, which is 2 days after they harvest my eggs, and exactly 2 days after 1 month of discovering that I have breast cancer.
As I said in the beginning, I am not sharing my story for your sympathy. I do not need any more “I am sorrys” - what I need is words of encouragement. Recommendations for books, movies and songs that motivate you to fight! Because that’s what I will be doing. I’m going to fight. I’m going to fight as hard as I possibly can because this treacherous journey that I am about to embark on will not be easy.
Breast Cancer typically occurs in 1 out of 8 woman over 50. When you’re in your 20s, it is 1 out 1,732, or less than 5 percent of all cases. Throughout my journey thus far, I have met too many other women with similar stories as mine. To where they were also told it was nothing and we are too young. We are not too young!! Breast Cancer happens to women in their 20s. It IS happening to women in their 20s. Mammograms and self breast exams need to begin in our 20s, not our 40s. Early detection saves lives they say, so why are we waiting until it’s too late to begin prevention?!
I know I will be okay. I know this will not be easy, but I know I will come out of this fight better and stronger than ever. These photos are the “good,” the bad, and the ugly of breast cancer. I say “good” because I took these photos when I thought I was going to have a mastectomy and I wanted to remember my body as it was. I wanted to honor my body for all that it has done for me in my 26 years of life and all that it has pushed through for me. I love my body and I am devastated for the changes that it will undergo, but I wanted to highlight it for what it was one last time. The bad is just the beginning of the surgeries that I will undergo. The ugly is just the beginning of the side effects my body will have from surgeries, and don’t even get me started on the side effects of chemo. This is just the beginning. I will continue to share my story to document the journey, to spread awareness for Breast Cancer in hopes to encourage others to advocate for themselves, and to always remind you to SELF-CHECK YOUR BREASTS!!!!”
Sadly, life for all of us that love her also stopped on October 8th: for me, my husband, her father, her sisters and brothers, her nieces and nephew, her aunts and uncles, her cousins, her friends, her coworkers, her students, and her loving boyfriend Conor and his amazing family. So many lives that have been touched by this incredible young woman!!!
I was waiting anxiously for that phone call-the call that would tell me everything was ok-that the lump had turned out to be nothing. I remember hearing her voice and asking if she was ok....she said “kind of” and then her voice broke...she told me that she had breast cancer and then put the doctor on the phone. My memory of that call is hazy...I was in complete and utter shock. I still am.
Over the past few weeks, we have made the hour and a half drive to Idaho Falls (this is the closest location for cancer care) numerous times for doctor’s appointments, scans, and surgery. Thankfully, the cancer hasn’t spread to her lymph nodes, so she is considered to have Stage 2 breast cancer. Due to the size of her two separate tumors and the fact that she is triple negative, she must undergo a combination of chemotherapy and immunotherapy for four months. The type of surgery to follow will be dependent on how the tumors react to the treatments. I will be staying here to help her win this fight for her life.
For those of you that know Macee, I don’t need to tell you how her smile and laughter have the ability to brighten even the darkest of days. She is so generous and caring. Since she was very young, she always knew that she wanted to work with children with disabilities. She has been a special education teacher at Teton School District for the past three years. Few people exist that are as dedicated to children as Macee is. Unfortunately, chemotherapy will severely weaken her immune system, so she will be unable to work with her kids while receiving treatment.
Macee hasn’t had a chance to live her life yet. She hasn’t had a chance to have her own family yet. She’s such a brave, beautiful young woman. She left home when she was only 22...right after she finished her masters degree in special education. She moved 2500 miles away from home, to Teton Valley Idaho, for a job that was only supposed to last a year.
Well, the job didn’t work out, but she fell in love with the natural beauty of the mountains and the kindhearted people that Teton Valley has to offer. That was a little over four years ago.
My hope in sharing Macee’s story is that we will be able to raise funds to help cover the costs of the numerous medical treatments and living expenses that are certain to follow.. fertility treatments are not covered by insurance. She needs to focus on healing, not on finances.
Macee has roommates that she will not be safe to be around during chemotherapy, so we are going to have to move her to a location more suitable for rest and healing-and try not to worry about being exposed to Covid. This is a great fear for all cancer patients.
Macee has been so brave through all of this, far braver than I. I never thought that I could love her more or be more proud of her than I already was-I am in awe of her strength and beauty. She is a true gem, and our ridiculous, crazy family can’t imagine a single day without her.
Thank you so much for the love, prayers, and support through the most difficult journey that Macee and our family have ever faced.
Please, even if you can not give a monetary contribution at this time, please take a moment to support Macee by sharing this page and her story with all of your loved ones. Let’s show Macee just how many people’s lives she has touched and how we will all raise her up during this temporary storm she is fighting.