My name is Paula Frazier, and I’m reaching out with a heart full of hope and love for my nephew and his beautiful family.

For the past few years, we’ve watched my sweet nephew bravely battle something no child should have to face — relentless vomiting, nearly every time he eats. Despite his age and all his courage, each bite can bring fear, pain, and uncertainty.

When he was born, he was diagnosed with Pierre Robin Syndrome (PRS) — a rare congenital condition that affects the jaw and airway. At first, we thought he had overcome the worst of it. But as time passed, it became clear something more was happening. For three years, his parents have tirelessly sought answers.

Doctors suspected allergies — so they changed his diet. Nothing changed.

They removed his adenoids, hoping that would help. It didn’t.

Now, we’re facing the very real possibility of surgery — not just to treat him, but to finally uncover what’s truly wrong.

This little boy has already endured more than many adults do in a lifetime. His family lives four hours away from the nearest specialist team at Children’s Mercy Hospital, and every trip, every test, every procedure takes a toll — not just emotionally, but financially.

We are humbly asking for help.

Anything you can give — whether it’s $5, $50, or simply sharing this story — will go toward:

• Medical expenses

• Travel costs

• A rental car

• Gas for the long drives to and from the hospital

We know times are tough, and we don’t take your generosity for granted. If you’re unable to donate through GoFundMe but would still like to help, we can also accept support through PayPal, Cash App, or Venmo.

And if you or someone you know has experience with Pierre Robin Syndrome, we would deeply appreciate your insight or connection — sometimes the most valuable gift is simply knowing we’re not alone.

From the bottom of our hearts, thank you for reading, for caring, and for holding this little boy in your thoughts.

With love and gratitude,

Paula Frazier