Hey everyone! We’re a student-led group called NEXP, working with New England XP, Inc. to support families affected by xeroderma pigmentosum (XP), a rare genetic disorder that makes it extremely dangerous for patients to be exposed to sunlight.
Right now, we’re fundraising for a patient and their family receiving treatment here in the U.S. Back home, care options are extremely limited, so being here is truly life-saving.... but also financially challenging. Their doctors back home recommended that they come to the U.S. to access the care they urgently need.
To make sure they can stay here and continue receiving the best possible treatment, they need our help. Every bit counts, even a few dollars can make a real difference. If you can’t donate, sharing this page means just as much. Thank you so much for your kindness and support!
If you would like to learn more about what the disease is, what we do, and how you can get involved please visit ins: @tu_nexp & https://newenglandxp.org/
Organizer
yuhan Zeng
Organizer
Somerville, MA
New England XP, Inc.
Beneficiary