Help needed for Julian

Hello my name is Priscilla Posey, my husband Mike and I are the proud parents of a very special little boy named Julian.
Julian loves life, and is a vibrant and happy child. Like many other children his age he loves movie monsters, dinosaurs, minions,and superheroes.
However I could tell early on that my little boy was different from the other children.
By his first birthday he still had not developed speech,he did not respond to others,and had severe crying spells that would last for hours on end. By his second birthday he was referred to a developmental pediatrician. After his evaluation we were told he was autistic and would require one on one care due to the fact that he was so far behind.
I immediately left work and pursued every therapy that could be beneficial to him.
He continued to regress. By his third birthday he was diagnosed with also having mixed expressive receptive language disorder, auditory processing disorder, and intellectual disability. Julian is stuck mentally at the level of an 18 month old.
In addition he has sensory processing disorder, severe anxiety disorder, and micro-chromosome deletion 11q14.1. Julian is the first recorded individual to ever have this deletion,it controls the neurological functioning of his brain.
Julian has to see over eight specialists for health issues.  He receives speech,occupational,physical,and applied behavioral analysis therapy on a regular basis.
In addition to his cognitive handicaps he has a variety of health problems including erythromelalgia, asthma, acid reflux, chronic constipation, chronic sinusitis, allergies, and immune system deficiency. As well as gait disturbance with an outer foot rotation accompanied with drop foot and flat feet.
Already in his short years my poor baby has had a total of six surgeries.

He is now five years old and is still functioning on the level of an toddler. However, thanks to the efforts of his therapists he is starting to show progress.
Because of the severity of his special needs Julian is unable to attend school. He is currently unable to talk, potty train, dress himself, brush his teeth, etc.
His therapies totaling at almost 46 hours a week and it is still not enough. In order for him to develop the skills he needs I have to continue these therapies with him at home but unfortunately we cannot afford the equipment to make this happen.
We generally do not like asking for help, but I also can not sit back and watch my sweet baby go through life without the skills he needs knowing we could give him a better quality of life. If you find it in your heart to help us we would be so grateful, if you are unable to do so please pray for us.
My greatest desire is for Julian to be happy and independent to the best of his abilities.As the mother of a truly wonderful child, I want to know I did everything possible to achieve this.

Items he needs are:
*Yogibo-deep sensory input(giant hugs and squeezes)
*Platform Swing with Stand-sensory intergration,promote communication,eye contact,overall awarness,processing,and understanding.
*Theraputic Listening Program-for auditory processing disorder promotes expressive and receptive language,cognitive functioning by stimulating the areas of the brain that aren't functioning.
*Bubble Column-calming during therapy activities,due to his Erythromelalgia keeping him calm is very important especially during therapies.
*Climb and Slide-depth perception,gross motor skills (for indoor use due to his Erythromelalgia)
*Sensory Pod- Sensory integration,calm during meltdowns over stimulation
*Crash Pad-promote sequencing and following directions by allowing him to get the deep sensory input he needs we are able to keep him happy and focused on task with fantastic results.
*Abilitation Jigglers-these provide oral motor stimulation and strengthens the jaw and tongue (he just had a tongue revision so these are very important for him)
If anyone has these items but no longer needs them and would like to sell or donate these items that would be extremely helpful.

Donations

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  • Estalee Eckert 
    • $20 
    • 39 mos
  • Lana Gay 
    • $20 
    • 39 mos
  • Austin Irby 
    • $25 
    • 39 mos
  • Anonymous 
    • $100 
    • 39 mos
  • Sarah Pease 
    • $50 
    • 39 mos
See all

Organizer

Priscilla Avila-Posey 
Organizer
Zephyrhills, FL
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