Support Zoey's Stem Cell Therapy

Our precious Zoey has been on quite a journey since her introduction to this world in 2019. Zoey was born full-term but did not present as a full-term baby. Her pediatrician believed her skull, as well as other features, looked premature. Keeping that in mind, Zoey grew and did all the usual baby things.

Around the 6-month mark, we began to transition Zoey to solid food, and she started having problems in her gut. She had so many issues passing a stool, and when she did, it was abnormal. Besides having gut issues, Zoey still was having a normal childhood. Around 9 months, she began to regress and lose words and eye contact. Being that my major was Special Education, I noticed that these were signs pointing to Autism Spectrum Disorder. Her pediatricians agreed, thus beginning our investigation into the cause. Her pediatrician suggested we do genetic testing. The results returned, and Zoey has a rare genetic mutation called KBG Syndrome. Feel free to look it up. It affects several systems in the body, and Zoey had to get all the tests. We checked her heart; there was a minor issue, but nothing immediately concerning for the cardiologist. Her eyes are fine. Her hearing is fine. All her systems seem to be in good working order. So, we did not find the culprit for her ASD.

It has been six long years of horrible meltdowns, sleepless nights, OCD tics, and a plethora of meetings with teachers, doctors, and specialists. However, Zoey is speaking but is still suffering while making progress. Insert my own health issues where I needed to do my investigation about what I was experiencing. I inherited a gene mutation from both of my parents called MTHFR. I began to investigate and found several parents of children with ASD passed this gene mutation on to their children. The problem is detoxification, which MTHFR people struggle with. I began to intervene and supplement Zoey's genetic woes. With the intervention, we saw Zoey go from barely verbal and using broken 3-word sentences to adding 100 words and complex sentences. We are blessed by the community of parents giving information. This brings us to our next medical intervention: Stem Cell Therapy. I have done tons of research regarding this intervention for Autism. Zoey barely missed the deadline to enroll in the Duke clinical trials. The US still recognizes Stem Cell Therapy for ASD to be experimental; thus, it is not covered by insurance. In laymen’s terms, it means a huge bill. Zoey has made many leaps and bounds but still has a long way to go. With stem cell therapy alongside ABA therapy and MTHFR intervention, I can see a bright future for Zoey. Unfortunately, only 2 of those things are within reach without massive change.

I am willing to do what I need to do for my daughter. I believe this is my burden to bear. So Sallie and I were going to sell our house to get Zoey the necessary help. However, some very close friends of mine, specifically my team of resident shepherds at LU, suggested this route because they wanted to help and believe the community has so much love for me and my family that they believe that together we could reach the monetary goal for Zoey without needing to sell our home. So here it is. I am opening myself up to the community for prayer and help. Every little bit is appreciated. If you can’t give, please share the link. Primarily, be praying that our government does what is needed to approve Stem Cell Therapy as an intervention for ASD so parents can treat their children as early as possible. Stem Cell treatments can be given every 8 months. We are just looking for 1. Love you all. Peace to you.

Best Regards,

Patrick Campbell