Support Wyatt and Beth's Brain Surgery Journey and Recovery

Just about 3.5 years ago, Wyatt (8) and Beth (4) started having medical issues.

Our prior medical provider misdiagnosed both of them. Wyatt was told he had gastro issues. We spent two years cleaning everything out of his diet. He lost 9 lbs that first summer due to what we were misinformed by.

Beth had been told she had toe walking and a tight Achilles.

When in reality, as of the last 35 days, we've found that both of them need brain surgery.

Beth was diagnosed on Feb 27th, 2025, from an MRI scan of her brain. She was shown to have a severe 24mm Chiari Malformation 1.

Wyatt had his MRI just three weeks later and was found to have Chiari 1 as well, 13mm, a moderate case, with regular active symptoms. He has one more MRI to come, then we will plan his surgery date.

It's really hard not to be angry with both of their misdiagnosed history and the missed years and physical damage done from the Chiari.

Wyatt didn't have learning disabilities prior to his Chiari attacks, and though the school has helped him sooooo much (Mrs. Luse is a Rockstar and adores Wyatt).

But Beth had a hospitalization at the beginning of March due to complications from anesthesia. She was immediately scheduled for surgery on March 28th, 2025.

Here's her update as of 3/30.

It's been rough, I'm not gonna lie.

Chiari Malformation 1 (Beth is a rare case due to her severity, and Beth and Wyatt are only the second sibling set our surgeon has had).

Friday:

She had a Posterior Fossa Decompression, duraplasty, and removal of her cerebellar tonsils (24mm). She got up to her room around 6 pm and had a lot of ups and downs with emesis.

Saturday:

She had overnight and into the day emesis. The morning was rough with pain management attempts. They gave her a shot of morphine. It worked well, and the nurse on nights got us both some needed sleep into this morning.

Sunday:

She woke up in pain. They gave her Valium/diazepam. It did nothing for her, literally didn't phase her, but made her nauseated. So three hours later, we added morphine, and she had a much better afternoon. But this evening has been hard. She had lots of pain very suddenly without notice. We are going to try Dilaudid... her heart rate jumped all over the place for 20 min from the pain.

We've been asked what we need. I honestly don't know how to answer that question. I ask the Holy Spirit daily for guidance. (I personally need a clone, winning lotto ticket, more PTO, just less stress).

Because Wyatt will be next, but thank God his surgery will be less invasive.

We've had neighbors drop off fun stuff for the kids♥️♥️♥️, family giving gifts♥️♥️♥️, an amazing family who's going through cancer with their son donate some of their blessings to us. They said it was paying it forward because they've received so much more than they needed. ♥️♥️♥️

But having sick kids isn't for the faint of heart, but it's not an option not to just keep moving forward and loving them.

If you know, you know.

Update as of 4/27:

Wyatt's surgery will be in about 3 weeks. We did find out that he has a Chiari 1.5 which is more severe then his sisters and will long-term if not operated cause more damage.

Beth unfortunately has had a CSF leak the last 4 weeks. She will go in next week for imaging to possibly close it as it's causing her healing to be very slow. it's very rare to have a leak as in 1-4% rare. She's had increased headaches, lack of sleep, steroid psychosis, and a few other issues.. she has great moments and good hours, but this CSF leak is really doing its number. Please pray for all of us. It's been a long few months.

With gratitude,

Corrin and Family