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Support my Dural Arteriovenous Fistula Journey

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For about a year now, I’ve experienced many symptoms! Initially, I thought it was fatigue from being a mom of two, headaches from always being on the go. I realized soon enough, what I experience daily isn’t normal. Numb feet and hands, headaches that are debilitating, vision changes, extreme fatigue etc. I finally discovered I have a pituitary cyst that is pushing against a wall in my brain that we suspected was causing a leak. We discovered after many tests that I have something called a DAVF. I’ll need to do a slightly invasive procedure to glue it & if that doesn’t work I’ll need open brain surgery. This has been a very complex situation due to it being the brain. Our goal it to make sure this doesnt continue to affect my neurological function.Anything helps & I want to get back to my normal self for my family. Thanks for the support! 
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    Organiser

    Loreena Cedeno
    Organiser
    Austin, TX

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